A European multi-language initiative to make the general population aware of independent clinical research: The European Communication on Research Awareness Need project

Paola Mosconi, Gerd Antes, Giorgio Barbareschi, Amanda Burls, Jacques Demotes-Mainard, Iain Chalmers, Cinzia Colombo, Silvio Garattini, Christian Gluud, Gill Gyte, Catherine Mcllwain, Matt Penfold, Nils Post, Roberto Satolli, Maria Rosa Valetto, Brian West, Stephanie Wolff

Research output: Contribution to journalArticlepeer-review

Abstract

Background: The ECRAN (European Communication on Research Awareness Needs) project was initiated in 2012, with support from the European Commission, to improve public knowledge about the importance of independent, multinational, clinical trials in Europe. Methods: Participants in the ECRAN consortium included clinicians and methodologists directly involved in clinical trials; researchers working in partnership with the public and patients; representatives of patients; and experts in science communication. We searched for, and evaluated, relevant existing materials and developed additional materials and tools, making them freely available under a Creative Commons licence. Results: The principal communication materials developed were: 1. A website (http://ecranproject.eu ) in six languages, including a Media centre section to help journalists to disseminate information about the ECRAN project Conclusions: Over a 2-year project, our multidisciplinary and multinational consortium was able to produce, and make freely available in many languages, new materials to promote public knowledge about the importance of independent and international clinical trials. Sustained funding for the ECRAN information platform could help to promote successful recruitment to independent clinical trials supported through the European Clinical Research Infrastructure Network.

Original languageEnglish
Article number19
JournalTrials
Volume17
Issue number1
DOIs
Publication statusPublished - Jan 12 2016

Keywords

  • Access to information
  • Health research
  • Independent clinical trial
  • Information
  • Lay people
  • Patients

ASJC Scopus subject areas

  • Medicine (miscellaneous)
  • Pharmacology (medical)

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