A new approach to clinical care of juvenile idiopathic arthritis: The juvenile arthritis multidimensional assessment report

Giovanni Filocamo, Alessandro Consolaro, Benedetta Schiappapietra, Sara Dalprà, Bianca Lattanzi, Silvia Magni-Manzoni, Nicolino Ruperto, Angela Pistorio, Silvia Pederzoli, Adele Civino, Dinara Guseinova, Ester Masala, Stefania Viola, Alberto Martini, Angelo Ravelli

Research output: Contribution to journalArticlepeer-review

Abstract

Objective. To develop and test a new multidimensional questionnaire for assessment of children with juvenile idiopathic arthritis (JIA) in standard clinical care. Methods. The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extra - articular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The JAMAR is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 7-18 years for use as a self-report. From March 2007 to September 2009, the questionnaire was completed by the parents of 618 children with JIA in 1814 visits and by 332 children in 749 visits. Results. The JAMAR was found to be feasible and to possess face and content validity. All parents and children reported that the questionnaire was simple and easy to understand. Completion and scoring appeared to be quick, requiring <15 minutes. There were very few missing data. Parents' proxy-reported and children's self-reported data were remarkably concordant. The JAMAR provided thorough information for the study patients about recent medical history and current health status. It performed similarly across different children's ages and characterized the level of disease activity and disability well. Conclusion. The development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA. The Journal of Rheumatology

Original languageEnglish
Pages (from-to)938-953
Number of pages16
JournalJournal of Rheumatology
Volume38
Issue number5
DOIs
Publication statusPublished - May 2011

Keywords

  • Juvenile idiopathic arthritis
  • Outcome research
  • Patient perspective

ASJC Scopus subject areas

  • Rheumatology
  • Immunology
  • Immunology and Allergy

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