A new device for the care of Congenital Central Hypoventilation Syndrome patients during sleep

M. Cavalleri, A. Carcano, F. Morandi, C. Piazza, E. Maggioni, G. Reni

Research output: Contribution to journalArticlepeer-review

Abstract

Congenital Central Hypoventilation Syndrome (CCHS) is a genetic disease that causes an autonomous nervous system dysregulation. Patients are unable to have a correct ventilation, especially during sleep, facing risk of death. Therefore, most of them are mechanically ventilated during night and their blood oxygenation is monitored, while a supervisor keeps watch over them. If low oxygen levels are detected by the pulse-oximeter, an alarm fires; the supervisor deals with the situation and, if there is neither a technical problem nor a false alarm, wakes the subject, as CCHS patients usually recover from hypoxia when roused from sleep. During a single night multiple alarms may occur, causing fractioned sleep for the subject and a lasting state of anxiety for supervisors.

ASJC Scopus subject areas

  • Medicine(all)

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