A proposal of architecture to share patients data out of healthcare settings for research purposes

Liss Hernandez, Jorge Onieva, Giuseppe Fico, Jorge Cancela, Arianna Dagliati, Mauro Bucalo, Lucia Sacchi, Riccardo Bellazzi, Maria T. Arredondo

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

The emerging of new Information and Communications Technologies (ICT), the aging population and the increased number of people suffering from chronic diseases are changing the health structure of developed countries. Given this situation, it is crucial that research based on demographics data is promoted and researchers can access large amounts of patient data, having this information validated by medical institutions. Currently, there are some platforms and web applications available that allow patients the self-management and control of their health and wellness information. Other platforms allow managing large amounts of patient data (demographic, diagnostic, laboratory and medication) and share patient cohorts considering different criteria of inclusion and exclusion. This paper proposes to use a selection of these platforms and it defines how to relate them to obtain a framework where the information provided by patients and medical institutions can be safely used and validated by researchers. Furthermore, the system will enable clinical researcher to share the results of their research in a controlled and safe environment.

Original languageEnglish
Title of host publication2014 IEEE-EMBS International Conference on Biomedical and Health Informatics, BHI 2014
PublisherIEEE Computer Society
Pages789-792
Number of pages4
ISBN (Print)9781479921317
DOIs
Publication statusPublished - 2014
Event2014 IEEE-EMBS International Conference on Biomedical and Health Informatics, BHI 2014 - Valencia, Spain
Duration: Jun 1 2014Jun 4 2014

Other

Other2014 IEEE-EMBS International Conference on Biomedical and Health Informatics, BHI 2014
CountrySpain
CityValencia
Period6/1/146/4/14

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ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics

Cite this

Hernandez, L., Onieva, J., Fico, G., Cancela, J., Dagliati, A., Bucalo, M., Sacchi, L., Bellazzi, R., & Arredondo, M. T. (2014). A proposal of architecture to share patients data out of healthcare settings for research purposes. In 2014 IEEE-EMBS International Conference on Biomedical and Health Informatics, BHI 2014 (pp. 789-792). [6864482] IEEE Computer Society. https://doi.org/10.1109/BHI.2014.6864482