Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report

Christoph Heesen, Jared Bruce, Peter Feys, Jaume Sastre-Garriga, Alessandra Solari, Lina Eliasson, Vicki Matthews, Bettina Hausmann, Amy Perrin Ross, Miho Asano, Kaisa Imonen-Charalambous, Sascha Köpke, Wendy Clyne, Paul Bissell

Research output: Contribution to journalArticle

Abstract

Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied.

Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session.

Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions.

Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.

Original languageEnglish
Pages (from-to)1795-1798
Number of pages4
JournalMultiple Sclerosis Journal
Volume20
Issue number13
DOIs
Publication statusPublished - Nov 20 2014

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Keywords

  • Adherence
  • Disease-modifying therapies
  • Multiple sclerosis
  • Rehabilitation

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology
  • Medicine(all)

Cite this

Heesen, C., Bruce, J., Feys, P., Sastre-Garriga, J., Solari, A., Eliasson, L., Matthews, V., Hausmann, B., Ross, A. P., Asano, M., Imonen-Charalambous, K., Köpke, S., Clyne, W., & Bissell, P. (2014). Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report. Multiple Sclerosis Journal, 20(13), 1795-1798. https://doi.org/10.1177/1352458514531348