Adult congenital heart disease nurse coordination: Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD)

Christina Sillman, Joanne Morin, Corina Thomet, Deena Barber, Yoshiko Mizuno, Hsiao Ling Yang, Theresa Malpas, Serena Francesca Flocco, Clare Finlay, Chi Wen Chen, Yvonne Balon, Susan M. Fernandes

Research output: Contribution to journalArticle

Abstract

Background Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to “promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary” (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. Methods Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. Results/conclusion The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy.

Original languageEnglish
Pages (from-to)125-131
Number of pages7
JournalInternational Journal of Cardiology
Volume229
DOIs
Publication statusPublished - Feb 15 2017

Fingerprint

Heart Diseases
Nurses
Self Care
Oceania
Far East
Advisory Committees
Patient Education
North America
Counseling
Nursing
Morbidity
Population

Keywords

  • Adult congenital heart disease
  • Grown-up congenital heart disease
  • Nurse coordination
  • Position statement
  • Team-based approach

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

Cite this

Adult congenital heart disease nurse coordination : Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD). / Sillman, Christina; Morin, Joanne; Thomet, Corina; Barber, Deena; Mizuno, Yoshiko; Yang, Hsiao Ling; Malpas, Theresa; Flocco, Serena Francesca; Finlay, Clare; Chen, Chi Wen; Balon, Yvonne; Fernandes, Susan M.

In: International Journal of Cardiology, Vol. 229, 15.02.2017, p. 125-131.

Research output: Contribution to journalArticle

Sillman, Christina ; Morin, Joanne ; Thomet, Corina ; Barber, Deena ; Mizuno, Yoshiko ; Yang, Hsiao Ling ; Malpas, Theresa ; Flocco, Serena Francesca ; Finlay, Clare ; Chen, Chi Wen ; Balon, Yvonne ; Fernandes, Susan M. / Adult congenital heart disease nurse coordination : Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD). In: International Journal of Cardiology. 2017 ; Vol. 229. pp. 125-131.
@article{91b903c47e5542719b3da2fd85eb8a8a,
title = "Adult congenital heart disease nurse coordination: Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD)",
abstract = "Background Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to “promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary” (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. Methods Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. Results/conclusion The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy.",
keywords = "Adult congenital heart disease, Grown-up congenital heart disease, Nurse coordination, Position statement, Team-based approach",
author = "Christina Sillman and Joanne Morin and Corina Thomet and Deena Barber and Yoshiko Mizuno and Yang, {Hsiao Ling} and Theresa Malpas and Flocco, {Serena Francesca} and Clare Finlay and Chen, {Chi Wen} and Yvonne Balon and Fernandes, {Susan M.}",
year = "2017",
month = "2",
day = "15",
doi = "10.1016/j.ijcard.2016.10.051",
language = "English",
volume = "229",
pages = "125--131",
journal = "International Journal of Cardiology",
issn = "0167-5273",
publisher = "Elsevier Ireland Ltd",

}

TY - JOUR

T1 - Adult congenital heart disease nurse coordination

T2 - Essential skills and role in optimizing team-based care a position statement from the International Society for Adult Congenital Heart Disease (ISACHD)

AU - Sillman, Christina

AU - Morin, Joanne

AU - Thomet, Corina

AU - Barber, Deena

AU - Mizuno, Yoshiko

AU - Yang, Hsiao Ling

AU - Malpas, Theresa

AU - Flocco, Serena Francesca

AU - Finlay, Clare

AU - Chen, Chi Wen

AU - Balon, Yvonne

AU - Fernandes, Susan M.

PY - 2017/2/15

Y1 - 2017/2/15

N2 - Background Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to “promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary” (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. Methods Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. Results/conclusion The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy.

AB - Background Founded in 1992, the International Society for Adult Congenital Heart Disease (ISACHD) is the leading global organization of professionals dedicated to pursuing excellence in the care of adults with congenital heart disease (CHD) worldwide. Among ISACHD's objectives is to “promote a holistic team-based approach to the care of the adult with CHD that is comprehensive, patient-centered, and interdisciplinary” (http://www.isachd.org). This emphasis on team-based care reflects the fact that adults with CHD constitute a heterogeneous population with a wide spectrum of disease complexity, frequent association with other organ involvement, and varied co-morbidities and psychosocial issues. Methods Recognizing the vital role of the adult CHD (ACHD) nurse coordinator (ACHD-NC) in optimizing team-based care, ISACHD established a task force to elucidate and provide guidance on the roles and responsibilities of the ACHD-NC. Acknowledging that nursing roles can vary widely from region to region based on factors such as credentials, scopes of practice, regulations, and local culture and tradition, an international panel was assembled with experts from North America, Europe, East Asia, and Oceania. The writing committee was tasked with reviewing key aspects of the ACHD-NC's role in team-based ACHD care. Results/conclusion The resulting ISACHD position statement addresses the ACHD-NC's role and skills required in organizing, coordinating, and facilitating the care of adults with CHD, holistic assessment of the ACHD patient, patient education and counseling, and support for self-care management and self-advocacy.

KW - Adult congenital heart disease

KW - Grown-up congenital heart disease

KW - Nurse coordination

KW - Position statement

KW - Team-based approach

UR - http://www.scopus.com/inward/record.url?scp=85005965492&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85005965492&partnerID=8YFLogxK

U2 - 10.1016/j.ijcard.2016.10.051

DO - 10.1016/j.ijcard.2016.10.051

M3 - Article

C2 - 28340978

AN - SCOPUS:85005965492

VL - 229

SP - 125

EP - 131

JO - International Journal of Cardiology

JF - International Journal of Cardiology

SN - 0167-5273

ER -