Antenatal Diagnosis of Diaphragmatic Hernia: Parents' Emotional and Cognitive Reactions

Lucia Aite, Alessandro Trucchi, Antonella Nahom, Germana Casaccia, Antonio Zaccara, Claudio Giorlandino, Pietro Bagolan, F. Leditschke, L. Aite, J. Tovar, [No Value] Kokkonen

Research output: Contribution to journalArticle

Abstract

Purpose: The aim of this study was to assess parent's emotional and cognitive reactions to the prenatal diagnosis of diaphragmatic hernia in their prospective children. Methods: A survey was conducted by means of a questionnaire. In the period ranging from 1997 to 2002, 40 couples in whom an established diagnosis of diaphragmatic hernia was made in their fetus were seen for prenatal consultation at a tertiary referral center. Results: Overall response rate was 93% (37 couples). Mean period since diagnosis for compilation of the questionnaire was 2 weeks. Mean gestational age at diagnosis was 25 weeks (range, 16 to 35 weeks). All parents lacked prediagnostic knowledge of diaphragmatic hernia and consider a single consultation with the paediatric surgeon inadequate to have a clear understanding of the anomaly. Only 1 mother and 1 father reported they understood all the information given by the surgeon, The most frequent (75%) feeling during and after the consultation was fear. Most parents (70%) referred to the intense emotions as the factor that made it difficult to follow the surgeon's explanations as well as to ask questions. Conclusions: Because of the incompatibility of emotional distress and optimum learning, impairment of early comprehension of information about diaphragmatic hernia is unavoidable. Therefore, we believe that follow-up antenatal consultations and provision of written and visual illustration are extremely important to facilitate informed choices.

Original languageEnglish
Pages (from-to)174-178
Number of pages5
JournalJournal of Pediatric Surgery
Volume39
Issue number2
DOIs
Publication statusPublished - Feb 2004

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Diaphragmatic Hernia
Prenatal Diagnosis
Referral and Consultation
Parents
Emotions
Tertiary Care Centers
Fathers
Gestational Age
Fear
Fetus
Mothers
Learning
Pediatrics
Surgeons
Surveys and Questionnaires

Keywords

  • Congenital diaphragmatic hernia
  • Parental anxiety
  • Prenatal diagnosis

ASJC Scopus subject areas

  • Surgery

Cite this

Antenatal Diagnosis of Diaphragmatic Hernia : Parents' Emotional and Cognitive Reactions. / Aite, Lucia; Trucchi, Alessandro; Nahom, Antonella; Casaccia, Germana; Zaccara, Antonio; Giorlandino, Claudio; Bagolan, Pietro; Leditschke, F.; Aite, L.; Tovar, J.; Kokkonen, [No Value].

In: Journal of Pediatric Surgery, Vol. 39, No. 2, 02.2004, p. 174-178.

Research output: Contribution to journalArticle

Aite, L, Trucchi, A, Nahom, A, Casaccia, G, Zaccara, A, Giorlandino, C, Bagolan, P, Leditschke, F, Aite, L, Tovar, J & Kokkonen, NV 2004, 'Antenatal Diagnosis of Diaphragmatic Hernia: Parents' Emotional and Cognitive Reactions', Journal of Pediatric Surgery, vol. 39, no. 2, pp. 174-178. https://doi.org/10.1016/j.jpedsurg.2003.10.010
Aite, Lucia ; Trucchi, Alessandro ; Nahom, Antonella ; Casaccia, Germana ; Zaccara, Antonio ; Giorlandino, Claudio ; Bagolan, Pietro ; Leditschke, F. ; Aite, L. ; Tovar, J. ; Kokkonen, [No Value]. / Antenatal Diagnosis of Diaphragmatic Hernia : Parents' Emotional and Cognitive Reactions. In: Journal of Pediatric Surgery. 2004 ; Vol. 39, No. 2. pp. 174-178.
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