Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy

Simona Bertoli, Andrea Foppiani, Ramona De Amicis, Alessandro Leone, Chiara Mastella, Michela Bassano, Ester Giaquinto, Giovanni Baranello, Alberto Battezzati

Research output: Contribution to journalArticle

Abstract

Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. The standardization process was able to produce inter-observer reliability values in agreement with the literature and a procedure manual is now available for multicentre studies of nutritional status and body composition in SMA and possibly other pediatric neuromuscular disorders.

Original languageEnglish
JournalEuropean Journal of Clinical Nutrition
DOIs
Publication statusAccepted/In press - Jan 1 2019

Fingerprint

Spinal Muscular Atrophy
Nutrition Surveys
Nutritional Status
Body Composition
Neuromuscular Diseases
Multicenter Studies
Longitudinal Studies
Pediatrics
Growth
Pharmaceutical Preparations

ASJC Scopus subject areas

  • Medicine (miscellaneous)
  • Nutrition and Dietetics

Cite this

Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy. / Bertoli, Simona; Foppiani, Andrea; De Amicis, Ramona; Leone, Alessandro; Mastella, Chiara; Bassano, Michela; Giaquinto, Ester; Baranello, Giovanni; Battezzati, Alberto.

In: European Journal of Clinical Nutrition, 01.01.2019.

Research output: Contribution to journalArticle

Bertoli, Simona ; Foppiani, Andrea ; De Amicis, Ramona ; Leone, Alessandro ; Mastella, Chiara ; Bassano, Michela ; Giaquinto, Ester ; Baranello, Giovanni ; Battezzati, Alberto. / Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy. In: European Journal of Clinical Nutrition. 2019.
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