Birth of a child with congenital heart disease: Emotional reactions of mothers and fathers according to time of diagnosis

Francesca Bevilacqua, Sara Palatta, Nadia Mirante, Marina Cuttini, Giulio Seganti, Andrea Dotta, Fiammetta Piersigilli

Research output: Contribution to journalArticle

Abstract

Objective: To evaluate emotional distress, depression and quality of life in parents of infants with severe congenital heart disease (CHD) during their first hospitalization. Methods: A pilot study for 38 parental couples of infants with CHD hospitalized within the 3 months of life. Parents filled up three self-administered questionnaires. We compared differences in the variables measuring emotional distress, depression and quality of life between mothers and fathers, and between prenatal and postnatal diagnosis. Results: Stress and depression levels were significantly higher in mothers than in fathers (stress: 81.8% mothers versus 60.6% fathers; depression: 45.7% mothers versus 20.0% fathers). No difference were found between prenatal and postnatal groups in any field tested but, in percentage, mothers receiving prenatal diagnosis were more depressed, whereas those receiving postnatal diagnosis were more stressed. Fathers showed same tendency. Conclusions: Parents of newborns with severe CHD, especially mothers, need psychological support during their child's hospitalization. Parents of children diagnosed prenatally may need counseling throughout pregnancy to help them recover from the loss of the imagined healthy child.

Original languageEnglish
Pages (from-to)1249-1253
Number of pages5
JournalJournal of Maternal-Fetal and Neonatal Medicine
Volume26
Issue number12
DOIs
Publication statusPublished - Aug 2013

Fingerprint

Fathers
Heart Diseases
Mothers
Parturition
Parents
Depression
Prenatal Diagnosis
Hospitalization
Quality of Life
Counseling
Newborn Infant
Psychology
Pregnancy

Keywords

  • Congenital heart disease
  • Depression
  • Emotional stress
  • Prenatal diagnosis
  • Quality of life

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Obstetrics and Gynaecology

Cite this

@article{cec2bf2fc996485690489da51de76fcc,
title = "Birth of a child with congenital heart disease: Emotional reactions of mothers and fathers according to time of diagnosis",
abstract = "Objective: To evaluate emotional distress, depression and quality of life in parents of infants with severe congenital heart disease (CHD) during their first hospitalization. Methods: A pilot study for 38 parental couples of infants with CHD hospitalized within the 3 months of life. Parents filled up three self-administered questionnaires. We compared differences in the variables measuring emotional distress, depression and quality of life between mothers and fathers, and between prenatal and postnatal diagnosis. Results: Stress and depression levels were significantly higher in mothers than in fathers (stress: 81.8{\%} mothers versus 60.6{\%} fathers; depression: 45.7{\%} mothers versus 20.0{\%} fathers). No difference were found between prenatal and postnatal groups in any field tested but, in percentage, mothers receiving prenatal diagnosis were more depressed, whereas those receiving postnatal diagnosis were more stressed. Fathers showed same tendency. Conclusions: Parents of newborns with severe CHD, especially mothers, need psychological support during their child's hospitalization. Parents of children diagnosed prenatally may need counseling throughout pregnancy to help them recover from the loss of the imagined healthy child.",
keywords = "Congenital heart disease, Depression, Emotional stress, Prenatal diagnosis, Quality of life",
author = "Francesca Bevilacqua and Sara Palatta and Nadia Mirante and Marina Cuttini and Giulio Seganti and Andrea Dotta and Fiammetta Piersigilli",
year = "2013",
month = "8",
doi = "10.3109/14767058.2013.776536",
language = "English",
volume = "26",
pages = "1249--1253",
journal = "Journal of Maternal-Fetal and Neonatal Medicine",
issn = "1476-7058",
publisher = "Informa Healthcare",
number = "12",

}

TY - JOUR

T1 - Birth of a child with congenital heart disease

T2 - Emotional reactions of mothers and fathers according to time of diagnosis

AU - Bevilacqua, Francesca

AU - Palatta, Sara

AU - Mirante, Nadia

AU - Cuttini, Marina

AU - Seganti, Giulio

AU - Dotta, Andrea

AU - Piersigilli, Fiammetta

PY - 2013/8

Y1 - 2013/8

N2 - Objective: To evaluate emotional distress, depression and quality of life in parents of infants with severe congenital heart disease (CHD) during their first hospitalization. Methods: A pilot study for 38 parental couples of infants with CHD hospitalized within the 3 months of life. Parents filled up three self-administered questionnaires. We compared differences in the variables measuring emotional distress, depression and quality of life between mothers and fathers, and between prenatal and postnatal diagnosis. Results: Stress and depression levels were significantly higher in mothers than in fathers (stress: 81.8% mothers versus 60.6% fathers; depression: 45.7% mothers versus 20.0% fathers). No difference were found between prenatal and postnatal groups in any field tested but, in percentage, mothers receiving prenatal diagnosis were more depressed, whereas those receiving postnatal diagnosis were more stressed. Fathers showed same tendency. Conclusions: Parents of newborns with severe CHD, especially mothers, need psychological support during their child's hospitalization. Parents of children diagnosed prenatally may need counseling throughout pregnancy to help them recover from the loss of the imagined healthy child.

AB - Objective: To evaluate emotional distress, depression and quality of life in parents of infants with severe congenital heart disease (CHD) during their first hospitalization. Methods: A pilot study for 38 parental couples of infants with CHD hospitalized within the 3 months of life. Parents filled up three self-administered questionnaires. We compared differences in the variables measuring emotional distress, depression and quality of life between mothers and fathers, and between prenatal and postnatal diagnosis. Results: Stress and depression levels were significantly higher in mothers than in fathers (stress: 81.8% mothers versus 60.6% fathers; depression: 45.7% mothers versus 20.0% fathers). No difference were found between prenatal and postnatal groups in any field tested but, in percentage, mothers receiving prenatal diagnosis were more depressed, whereas those receiving postnatal diagnosis were more stressed. Fathers showed same tendency. Conclusions: Parents of newborns with severe CHD, especially mothers, need psychological support during their child's hospitalization. Parents of children diagnosed prenatally may need counseling throughout pregnancy to help them recover from the loss of the imagined healthy child.

KW - Congenital heart disease

KW - Depression

KW - Emotional stress

KW - Prenatal diagnosis

KW - Quality of life

UR - http://www.scopus.com/inward/record.url?scp=84880263897&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84880263897&partnerID=8YFLogxK

U2 - 10.3109/14767058.2013.776536

DO - 10.3109/14767058.2013.776536

M3 - Article

C2 - 23419128

AN - SCOPUS:84880263897

VL - 26

SP - 1249

EP - 1253

JO - Journal of Maternal-Fetal and Neonatal Medicine

JF - Journal of Maternal-Fetal and Neonatal Medicine

SN - 1476-7058

IS - 12

ER -