Capturing how individuals perceive genetic risk information: a phenomenological perspective

Research output: Contribution to journalArticlepeer-review

Abstract

The prevailing scientific approach to genetic risk information centres around communication of risk in terms of numerical probabilities. However, it is well known that individuals have difficulties in understanding and making sense of this information in their own lives. There is, accordingly, a need to investigate whether any methodologies in psychological research may shed light on how individuals perceive genetic risk information within their specific contexts of family history, personal relationships, lifestyles and future plans. To explore whether hermeneutic phenomenology and methodology may offer a deeper understanding of an individual’s perception of having a hereditary predisposition, we conducted a literature search. We found that Interpretative Phenomenological Analysis may be a fruitful approach to an individual’s lived experiential world. The studies analysed showed how individuals interpret information about genetic risk in the light of their own beliefs about the multiple causes of illness, patterns of heredity and observable risk factors in their families. People’s understanding of their experience is derived from an intricate interconnectedness with others that arises in the context of a world shaped in equal measure by language and culture, on the one hand, and bodies and objects on the other.

Original languageEnglish
Pages (from-to)259-267
Number of pages9
JournalJournal of Risk Research
Volume21
Issue number2
DOIs
Publication statusPublished - Feb 1 2018

Keywords

  • genetic risk
  • hermeneutic phenomenology
  • interpretative phenomenological analysis
  • risk perception

ASJC Scopus subject areas

  • Safety, Risk, Reliability and Quality
  • Engineering(all)
  • Social Sciences(all)
  • Strategy and Management

Fingerprint Dive into the research topics of 'Capturing how individuals perceive genetic risk information: a phenomenological perspective'. Together they form a unique fingerprint.

Cite this