Collecting patient reported outcomes in the wild: Opportunities and challenges

Federico Cabitza, Linda Greta Dui

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Collecting Patient Reported Outcomes (PROs) is generally seen as an effective way to assess the efficacy and appropriateness of medical interventions, from the patients' perspective. In 2016 the Galeazzi Orthopaedic Institute established a digitized program of PROs collection from spine, hip and knee surgery patients. In this work, we re-port the findings from the data analysis of the responses collected so far about the complementarity of PROs with respect to the data reported by the clinicians, and about the main biases that can undermine their validity and reliability. Although PROs collection is recognized as being far more complex than just asking the patients “how they feel” on a regular basis and it entails costs and devoted electronic platforms, we advocate their further diffusion for the assessment of health technology and clinical procedures.

Original languageEnglish
Title of host publicationBuilding Continents of Knowledge in Oceans of Data
Subtitle of host publicationThe Future of Co-Created eHealth - Proceedings of MIE 2018
EditorsGunnar O. Klein, Daniel Karlsson, Anne Moen, Adrien Ugon
PublisherIOS Press
Pages36-40
Number of pages5
ISBN (Electronic)9781614998518
DOIs
Publication statusPublished - Jan 1 2018
Event40th Medical Informatics in Europe Conference, MIE 2018 - Gothenburg, Sweden
Duration: Apr 24 2018Apr 26 2018

Publication series

NameStudies in Health Technology and Informatics
Volume247
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference40th Medical Informatics in Europe Conference, MIE 2018
CountrySweden
CityGothenburg
Period4/24/184/26/18

Keywords

  • Electronic registries
  • Patient reported outcome measures
  • Patient reported outcomes
  • PROMS
  • PROs

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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