Cross-national differences in the prevalence and correlates of burden among older family caregivers in the World Health Organization World Mental Health (WMH) Surveys

V. Shahly, S. Chatterji, M. J. Gruber, A. Al-Hamzawi, J. Alonso, L. H. Andrade, M. C. Angermeyer, R. Bruffaerts, B. Bunting, J. M. Caldas-De-Almeida, G. De Girolamo, P. De Jonge, S. Florescu, O. Gureje, J. M. Haro, H. R. Hinkov, C. Hu, E. G. Karam, J. P. Lépine, D. LevinsonM. E. Medina-Mora, J. Posada-Villa, N. A. Sampson, J. K. Trivedi, M. C. Viana, R. C. Kessler

Research output: Contribution to journalArticle

31 Citations (Scopus)

Abstract

Background Current trends in population aging affect both recipients and providers of informal family caregiving, as the pool of family caregivers is shrinking while demand is increasing. Epidemiological research has not yet examined the implications of these trends for burdens experienced by aging family caregivers. Method Cross-sectional community surveys in 20 countries asked 13 892 respondents aged 50+ years about the objective (time, financial) and subjective (distress, embarrassment) burdens they experience in providing care to first-degree relatives with 12 broadly defined serious physical and mental conditions. Differential burden was examined by country income category, kinship status and type of condition. Results Among the 26.9-42.5% respondents in high-, upper-middle-, and low-/lower-middle-income countries reporting serious relative health conditions, 35.7-42.5% reported burden. Of those, 25.2-29.0% spent time and 13.5-19.4% money, while 24.4-30.6% felt distress and 6.4-21.7% embarrassment. Mean caregiving hours per week in those giving any time were 16.6-23.6 (169.9-205.8 h/week per 100 people aged 50+ years). Burden in low-/lower-middle-income countries was 2- to 3-fold higher than in higher-income countries, with any financial burden averaging 14.3% of median family income in high-, 17.7% in upper-middle-, and 39.8% in low-/lower-middle-income countries. Higher burden was reported by women than men and for conditions of spouses and children than parents or siblings. Conclusions Uncompensated family caregiving is an important societal asset that offsets rising formal healthcare costs. However, the substantial burdens experienced by aging caregivers across multiple family health conditions and geographic regions threaten the continued integrity of their caregiving capacity. Initiatives supporting older family caregivers are consequently needed, especially in low-/lower-middle-income countries.

Original languageEnglish
Pages (from-to)865-879
Number of pages15
JournalPsychological Medicine
Volume43
Issue number4
DOIs
Publication statusPublished - Apr 2013

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Health Surveys
Caregivers
Mental Health
Family Health
Global Health
Spouses
Health Care Costs
Siblings
Cross-Sectional Studies
Parents
Health
Research
Population
Surveys and Questionnaires

Keywords

  • cross-national studies
  • epidemiology
  • family burden
  • Key words Caregivers
  • mental health

ASJC Scopus subject areas

  • Psychiatry and Mental health
  • Applied Psychology

Cite this

Cross-national differences in the prevalence and correlates of burden among older family caregivers in the World Health Organization World Mental Health (WMH) Surveys. / Shahly, V.; Chatterji, S.; Gruber, M. J.; Al-Hamzawi, A.; Alonso, J.; Andrade, L. H.; Angermeyer, M. C.; Bruffaerts, R.; Bunting, B.; Caldas-De-Almeida, J. M.; De Girolamo, G.; De Jonge, P.; Florescu, S.; Gureje, O.; Haro, J. M.; Hinkov, H. R.; Hu, C.; Karam, E. G.; Lépine, J. P.; Levinson, D.; Medina-Mora, M. E.; Posada-Villa, J.; Sampson, N. A.; Trivedi, J. K.; Viana, M. C.; Kessler, R. C.

In: Psychological Medicine, Vol. 43, No. 4, 04.2013, p. 865-879.

Research output: Contribution to journalArticle

Shahly, V, Chatterji, S, Gruber, MJ, Al-Hamzawi, A, Alonso, J, Andrade, LH, Angermeyer, MC, Bruffaerts, R, Bunting, B, Caldas-De-Almeida, JM, De Girolamo, G, De Jonge, P, Florescu, S, Gureje, O, Haro, JM, Hinkov, HR, Hu, C, Karam, EG, Lépine, JP, Levinson, D, Medina-Mora, ME, Posada-Villa, J, Sampson, NA, Trivedi, JK, Viana, MC & Kessler, RC 2013, 'Cross-national differences in the prevalence and correlates of burden among older family caregivers in the World Health Organization World Mental Health (WMH) Surveys', Psychological Medicine, vol. 43, no. 4, pp. 865-879. https://doi.org/10.1017/S0033291712001468
Shahly, V. ; Chatterji, S. ; Gruber, M. J. ; Al-Hamzawi, A. ; Alonso, J. ; Andrade, L. H. ; Angermeyer, M. C. ; Bruffaerts, R. ; Bunting, B. ; Caldas-De-Almeida, J. M. ; De Girolamo, G. ; De Jonge, P. ; Florescu, S. ; Gureje, O. ; Haro, J. M. ; Hinkov, H. R. ; Hu, C. ; Karam, E. G. ; Lépine, J. P. ; Levinson, D. ; Medina-Mora, M. E. ; Posada-Villa, J. ; Sampson, N. A. ; Trivedi, J. K. ; Viana, M. C. ; Kessler, R. C. / Cross-national differences in the prevalence and correlates of burden among older family caregivers in the World Health Organization World Mental Health (WMH) Surveys. In: Psychological Medicine. 2013 ; Vol. 43, No. 4. pp. 865-879.
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abstract = "Background Current trends in population aging affect both recipients and providers of informal family caregiving, as the pool of family caregivers is shrinking while demand is increasing. Epidemiological research has not yet examined the implications of these trends for burdens experienced by aging family caregivers. Method Cross-sectional community surveys in 20 countries asked 13 892 respondents aged 50+ years about the objective (time, financial) and subjective (distress, embarrassment) burdens they experience in providing care to first-degree relatives with 12 broadly defined serious physical and mental conditions. Differential burden was examined by country income category, kinship status and type of condition. Results Among the 26.9-42.5{\%} respondents in high-, upper-middle-, and low-/lower-middle-income countries reporting serious relative health conditions, 35.7-42.5{\%} reported burden. Of those, 25.2-29.0{\%} spent time and 13.5-19.4{\%} money, while 24.4-30.6{\%} felt distress and 6.4-21.7{\%} embarrassment. Mean caregiving hours per week in those giving any time were 16.6-23.6 (169.9-205.8 h/week per 100 people aged 50+ years). Burden in low-/lower-middle-income countries was 2- to 3-fold higher than in higher-income countries, with any financial burden averaging 14.3{\%} of median family income in high-, 17.7{\%} in upper-middle-, and 39.8{\%} in low-/lower-middle-income countries. Higher burden was reported by women than men and for conditions of spouses and children than parents or siblings. Conclusions Uncompensated family caregiving is an important societal asset that offsets rising formal healthcare costs. However, the substantial burdens experienced by aging caregivers across multiple family health conditions and geographic regions threaten the continued integrity of their caregiving capacity. Initiatives supporting older family caregivers are consequently needed, especially in low-/lower-middle-income countries.",
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T1 - Cross-national differences in the prevalence and correlates of burden among older family caregivers in the World Health Organization World Mental Health (WMH) Surveys

AU - Shahly, V.

AU - Chatterji, S.

AU - Gruber, M. J.

AU - Al-Hamzawi, A.

AU - Alonso, J.

AU - Andrade, L. H.

AU - Angermeyer, M. C.

AU - Bruffaerts, R.

AU - Bunting, B.

AU - Caldas-De-Almeida, J. M.

AU - De Girolamo, G.

AU - De Jonge, P.

AU - Florescu, S.

AU - Gureje, O.

AU - Haro, J. M.

AU - Hinkov, H. R.

AU - Hu, C.

AU - Karam, E. G.

AU - Lépine, J. P.

AU - Levinson, D.

AU - Medina-Mora, M. E.

AU - Posada-Villa, J.

AU - Sampson, N. A.

AU - Trivedi, J. K.

AU - Viana, M. C.

AU - Kessler, R. C.

PY - 2013/4

Y1 - 2013/4

N2 - Background Current trends in population aging affect both recipients and providers of informal family caregiving, as the pool of family caregivers is shrinking while demand is increasing. Epidemiological research has not yet examined the implications of these trends for burdens experienced by aging family caregivers. Method Cross-sectional community surveys in 20 countries asked 13 892 respondents aged 50+ years about the objective (time, financial) and subjective (distress, embarrassment) burdens they experience in providing care to first-degree relatives with 12 broadly defined serious physical and mental conditions. Differential burden was examined by country income category, kinship status and type of condition. Results Among the 26.9-42.5% respondents in high-, upper-middle-, and low-/lower-middle-income countries reporting serious relative health conditions, 35.7-42.5% reported burden. Of those, 25.2-29.0% spent time and 13.5-19.4% money, while 24.4-30.6% felt distress and 6.4-21.7% embarrassment. Mean caregiving hours per week in those giving any time were 16.6-23.6 (169.9-205.8 h/week per 100 people aged 50+ years). Burden in low-/lower-middle-income countries was 2- to 3-fold higher than in higher-income countries, with any financial burden averaging 14.3% of median family income in high-, 17.7% in upper-middle-, and 39.8% in low-/lower-middle-income countries. Higher burden was reported by women than men and for conditions of spouses and children than parents or siblings. Conclusions Uncompensated family caregiving is an important societal asset that offsets rising formal healthcare costs. However, the substantial burdens experienced by aging caregivers across multiple family health conditions and geographic regions threaten the continued integrity of their caregiving capacity. Initiatives supporting older family caregivers are consequently needed, especially in low-/lower-middle-income countries.

AB - Background Current trends in population aging affect both recipients and providers of informal family caregiving, as the pool of family caregivers is shrinking while demand is increasing. Epidemiological research has not yet examined the implications of these trends for burdens experienced by aging family caregivers. Method Cross-sectional community surveys in 20 countries asked 13 892 respondents aged 50+ years about the objective (time, financial) and subjective (distress, embarrassment) burdens they experience in providing care to first-degree relatives with 12 broadly defined serious physical and mental conditions. Differential burden was examined by country income category, kinship status and type of condition. Results Among the 26.9-42.5% respondents in high-, upper-middle-, and low-/lower-middle-income countries reporting serious relative health conditions, 35.7-42.5% reported burden. Of those, 25.2-29.0% spent time and 13.5-19.4% money, while 24.4-30.6% felt distress and 6.4-21.7% embarrassment. Mean caregiving hours per week in those giving any time were 16.6-23.6 (169.9-205.8 h/week per 100 people aged 50+ years). Burden in low-/lower-middle-income countries was 2- to 3-fold higher than in higher-income countries, with any financial burden averaging 14.3% of median family income in high-, 17.7% in upper-middle-, and 39.8% in low-/lower-middle-income countries. Higher burden was reported by women than men and for conditions of spouses and children than parents or siblings. Conclusions Uncompensated family caregiving is an important societal asset that offsets rising formal healthcare costs. However, the substantial burdens experienced by aging caregivers across multiple family health conditions and geographic regions threaten the continued integrity of their caregiving capacity. Initiatives supporting older family caregivers are consequently needed, especially in low-/lower-middle-income countries.

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KW - epidemiology

KW - family burden

KW - Key words Caregivers

KW - mental health

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