Defining research priorities in cystic fibrosis. Can existing knowledge and training in biomedical research affect the choice?

CF Italian Patient Centered Outcomes Research Working Group (IPaCOR)

Research output: Contribution to journalArticle

Abstract

The aim of this report is to assess whether the research issues priorities are perceived differently according to the Stakeholders (SH)'s individual knowledge of research topics and degree of training in biomedical research. Four groups of SH were enrolled in this study: 1. Skilled SH, specifically trained in biomedicine; 2. Unskilled untrained SH who responded to a written questionnaire in 2015; 3. SH who were trained for one year in a course delivered by professionals; 4. Untrained SH who responded to an online questionnaire in 2017. The large ranking order variability observed among groups addresses the question that the choices are markedly influenced by the SH's backgrounds. Such results emphasize the need to consider the education level and the delivery of ad hoc training activities by professionals to broaden the base of SH who may be considered qualified to transfer the Patient Centered Outcome Research principles into practice.

Original languageEnglish
Number of pages4
JournalJournal of Cystic Fibrosis
DOIs
Publication statusE-pub ahead of print - Mar 15 2018

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Cystic Fibrosis
Biomedical Research
Patient Outcome Assessment
Research
Teaching
Education
Surveys and Questionnaires

Cite this

Defining research priorities in cystic fibrosis. Can existing knowledge and training in biomedical research affect the choice? / CF Italian Patient Centered Outcomes Research Working Group (IPaCOR).

In: Journal of Cystic Fibrosis, 15.03.2018.

Research output: Contribution to journalArticle

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abstract = "The aim of this report is to assess whether the research issues priorities are perceived differently according to the Stakeholders (SH)'s individual knowledge of research topics and degree of training in biomedical research. Four groups of SH were enrolled in this study: 1. Skilled SH, specifically trained in biomedicine; 2. Unskilled untrained SH who responded to a written questionnaire in 2015; 3. SH who were trained for one year in a course delivered by professionals; 4. Untrained SH who responded to an online questionnaire in 2017. The large ranking order variability observed among groups addresses the question that the choices are markedly influenced by the SH's backgrounds. Such results emphasize the need to consider the education level and the delivery of ad hoc training activities by professionals to broaden the base of SH who may be considered qualified to transfer the Patient Centered Outcome Research principles into practice.",
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note = "Copyright {\circledC} 2018 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.",
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AU - CF Italian Patient Centered Outcomes Research Working Group (IPaCOR)

AU - Buzzetti, Roberto

AU - Galici, Valeria

AU - Cirilli, Natalia

AU - Majo, Fabio

AU - Graziano, Luigi

AU - Costa, Stefano

AU - Bonacina, Simona

AU - Carrubba, Marila

AU - Davì, Giuseppe

AU - Gagliano, Sabrina

AU - Cazzarolli, Clizia

AU - Ficili, Francesca

AU - Alghisi, Federico

AU - Samaja, Michele

AU - Magazzù, Giuseppe

N1 - Copyright © 2018 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.

PY - 2018/3/15

Y1 - 2018/3/15

N2 - The aim of this report is to assess whether the research issues priorities are perceived differently according to the Stakeholders (SH)'s individual knowledge of research topics and degree of training in biomedical research. Four groups of SH were enrolled in this study: 1. Skilled SH, specifically trained in biomedicine; 2. Unskilled untrained SH who responded to a written questionnaire in 2015; 3. SH who were trained for one year in a course delivered by professionals; 4. Untrained SH who responded to an online questionnaire in 2017. The large ranking order variability observed among groups addresses the question that the choices are markedly influenced by the SH's backgrounds. Such results emphasize the need to consider the education level and the delivery of ad hoc training activities by professionals to broaden the base of SH who may be considered qualified to transfer the Patient Centered Outcome Research principles into practice.

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