Disability and quality of life in hereditary ataxias: A self-administered postal questionnaire

Rosa D'ambrosio, Maurizio Leone, Maria Gabriella Rosso, Daniela Mittino, Francesco Brignolio

Research output: Contribution to journalArticle

Abstract

A postal questionnaire was sent to 151 patients affected by Friedreich's disease (FD) and other hereditary ataxias (OHA) to study their disability and quality of life. A 79.5% response rate was obtained. A scoring system based on disability in walking, dressing, personal care, eating and speaking was developed and used. Walking was the most impaired activity. The degree of disability was similar between FD and OHA. Institutionalization, frequency of social contacts, work activity, recreational and social activities were influenced by disability.

Original languageEnglish
Pages (from-to)10-14
Number of pages5
JournalDisability and Rehabilitation
Volume9
Issue number1
DOIs
Publication statusPublished - 1987

Keywords

  • Disability
  • Friedreich's disease
  • Hereditary ataxias
  • Quality of life
  • Questionnaire

ASJC Scopus subject areas

  • Rehabilitation

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