EMpowerment of PArents in THe Intensive Care Questionnaire: Translation and Validation in Italian PICUs

Andrea Wolfler, Alberto Giannini, Martina Finistrella, Ida Salvo, Edoardo Calderini, Giulia Frasson, Immacolata Dall'Oglio, Michela Di Furia, Rossella Iuzzolino, Massimo Musicco, Jos M Latour

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

OBJECTIVES: To translate and validate the EMpowerment of PArents in THe Intensive Care questionnaire to measure parent satisfaction and experiences in Italian PICUs.

DESIGN: Prospective, multicenter study.

SETTING: Four medical/surgical Italian PICUs in three tertiary hospitals.

PATIENTS: Families of children, 0-16 years old, admitted to the PICUs were invited to participate. Inclusion criteria were PICU length of stay greater than 24 hours and good comprehension of Italian language by parents/guardians. Exclusion criteria were readmission within 6 months and parents of a child who died in the PICU.

INTERVENTIONS: Distribution, at PICU discharge, of the EMpowerment of PArents in THe Intensive Care questionnaire with 65 items divided into five domains and a six-point rating scale: 1 " certainly no" to 6 "certainly yes."

MEASUREMENTS AND MAIN RESULTS: Back and forward translations of the EMpowerment of PArents in THe Intensive Care questionnaire between Dutch (original version) and Italian languages were deployed. Cultural adaptation of the instrument was confirmed by a consultation with a representative parent group (n = 10). Totally, 150 of 190 parents (79%) participated in the study. On item level, 12 statements scored a mean below 5.0. The Cronbach's α, measured for internal consistency, on domain level was between 0.67 and 0.96. Congruent validity was measured by correlating the five domains with four gold standard satisfaction measures and showed adequate correlations (rs, 0.41-0.71; p < 0.05). No significant differences occurred in the nondifferential validity testing between three children's characteristics and the domains; excepting parents with a child for a surgical and planned admission were more satisfied on information and organization issues.

CONCLUSIONS: The Italian version of the EMpowerment of PArents in THe Intensive Care questionnaire has satisfactory reliability and validity estimates and seems to be appropriate for Italian PICU setting. It is an important instrument providing benchmark data to be used in the process of quality improvement toward the development of a family-centered care philosophy within Italian PICUs.

Original languageEnglish
Pages (from-to)e77-e85
JournalPediatric Critical Care Medicine
Volume18
Issue number2
DOIs
Publication statusPublished - Feb 2017

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Critical Care
Parents
Language
Benchmarking
Power (Psychology)
Surveys and Questionnaires
Quality Improvement
Tertiary Care Centers
Reproducibility of Results
Multicenter Studies
Length of Stay
Referral and Consultation
Organizations
Prospective Studies

Keywords

  • Adolescent
  • Child
  • Child, Preschool
  • Critical Care
  • Female
  • Humans
  • Infant
  • Infant, Newborn
  • Intensive Care Units, Pediatric
  • Italy
  • Male
  • Parents/psychology
  • Personal Satisfaction
  • Power (Psychology)
  • Prospective Studies
  • Psychometrics
  • Quality Improvement
  • Quality Indicators, Health Care
  • Reproducibility of Results
  • Surveys and Questionnaires
  • Translations

Cite this

EMpowerment of PArents in THe Intensive Care Questionnaire : Translation and Validation in Italian PICUs. / Wolfler, Andrea; Giannini, Alberto; Finistrella, Martina; Salvo, Ida; Calderini, Edoardo; Frasson, Giulia; Dall'Oglio, Immacolata; Di Furia, Michela; Iuzzolino, Rossella; Musicco, Massimo; Latour, Jos M.

In: Pediatric Critical Care Medicine, Vol. 18, No. 2, 02.2017, p. e77-e85.

Research output: Contribution to journalArticle

Wolfler, A, Giannini, A, Finistrella, M, Salvo, I, Calderini, E, Frasson, G, Dall'Oglio, I, Di Furia, M, Iuzzolino, R, Musicco, M & Latour, JM 2017, 'EMpowerment of PArents in THe Intensive Care Questionnaire: Translation and Validation in Italian PICUs', Pediatric Critical Care Medicine, vol. 18, no. 2, pp. e77-e85. https://doi.org/10.1097/PCC.0000000000001031
Wolfler, Andrea ; Giannini, Alberto ; Finistrella, Martina ; Salvo, Ida ; Calderini, Edoardo ; Frasson, Giulia ; Dall'Oglio, Immacolata ; Di Furia, Michela ; Iuzzolino, Rossella ; Musicco, Massimo ; Latour, Jos M. / EMpowerment of PArents in THe Intensive Care Questionnaire : Translation and Validation in Italian PICUs. In: Pediatric Critical Care Medicine. 2017 ; Vol. 18, No. 2. pp. e77-e85.
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T1 - EMpowerment of PArents in THe Intensive Care Questionnaire

T2 - Translation and Validation in Italian PICUs

AU - Wolfler, Andrea

AU - Giannini, Alberto

AU - Finistrella, Martina

AU - Salvo, Ida

AU - Calderini, Edoardo

AU - Frasson, Giulia

AU - Dall'Oglio, Immacolata

AU - Di Furia, Michela

AU - Iuzzolino, Rossella

AU - Musicco, Massimo

AU - Latour, Jos M

PY - 2017/2

Y1 - 2017/2

N2 - OBJECTIVES: To translate and validate the EMpowerment of PArents in THe Intensive Care questionnaire to measure parent satisfaction and experiences in Italian PICUs.DESIGN: Prospective, multicenter study.SETTING: Four medical/surgical Italian PICUs in three tertiary hospitals.PATIENTS: Families of children, 0-16 years old, admitted to the PICUs were invited to participate. Inclusion criteria were PICU length of stay greater than 24 hours and good comprehension of Italian language by parents/guardians. Exclusion criteria were readmission within 6 months and parents of a child who died in the PICU.INTERVENTIONS: Distribution, at PICU discharge, of the EMpowerment of PArents in THe Intensive Care questionnaire with 65 items divided into five domains and a six-point rating scale: 1 " certainly no" to 6 "certainly yes."MEASUREMENTS AND MAIN RESULTS: Back and forward translations of the EMpowerment of PArents in THe Intensive Care questionnaire between Dutch (original version) and Italian languages were deployed. Cultural adaptation of the instrument was confirmed by a consultation with a representative parent group (n = 10). Totally, 150 of 190 parents (79%) participated in the study. On item level, 12 statements scored a mean below 5.0. The Cronbach's α, measured for internal consistency, on domain level was between 0.67 and 0.96. Congruent validity was measured by correlating the five domains with four gold standard satisfaction measures and showed adequate correlations (rs, 0.41-0.71; p < 0.05). No significant differences occurred in the nondifferential validity testing between three children's characteristics and the domains; excepting parents with a child for a surgical and planned admission were more satisfied on information and organization issues.CONCLUSIONS: The Italian version of the EMpowerment of PArents in THe Intensive Care questionnaire has satisfactory reliability and validity estimates and seems to be appropriate for Italian PICU setting. It is an important instrument providing benchmark data to be used in the process of quality improvement toward the development of a family-centered care philosophy within Italian PICUs.

AB - OBJECTIVES: To translate and validate the EMpowerment of PArents in THe Intensive Care questionnaire to measure parent satisfaction and experiences in Italian PICUs.DESIGN: Prospective, multicenter study.SETTING: Four medical/surgical Italian PICUs in three tertiary hospitals.PATIENTS: Families of children, 0-16 years old, admitted to the PICUs were invited to participate. Inclusion criteria were PICU length of stay greater than 24 hours and good comprehension of Italian language by parents/guardians. Exclusion criteria were readmission within 6 months and parents of a child who died in the PICU.INTERVENTIONS: Distribution, at PICU discharge, of the EMpowerment of PArents in THe Intensive Care questionnaire with 65 items divided into five domains and a six-point rating scale: 1 " certainly no" to 6 "certainly yes."MEASUREMENTS AND MAIN RESULTS: Back and forward translations of the EMpowerment of PArents in THe Intensive Care questionnaire between Dutch (original version) and Italian languages were deployed. Cultural adaptation of the instrument was confirmed by a consultation with a representative parent group (n = 10). Totally, 150 of 190 parents (79%) participated in the study. On item level, 12 statements scored a mean below 5.0. The Cronbach's α, measured for internal consistency, on domain level was between 0.67 and 0.96. Congruent validity was measured by correlating the five domains with four gold standard satisfaction measures and showed adequate correlations (rs, 0.41-0.71; p < 0.05). No significant differences occurred in the nondifferential validity testing between three children's characteristics and the domains; excepting parents with a child for a surgical and planned admission were more satisfied on information and organization issues.CONCLUSIONS: The Italian version of the EMpowerment of PArents in THe Intensive Care questionnaire has satisfactory reliability and validity estimates and seems to be appropriate for Italian PICU setting. It is an important instrument providing benchmark data to be used in the process of quality improvement toward the development of a family-centered care philosophy within Italian PICUs.

KW - Adolescent

KW - Child

KW - Child, Preschool

KW - Critical Care

KW - Female

KW - Humans

KW - Infant

KW - Infant, Newborn

KW - Intensive Care Units, Pediatric

KW - Italy

KW - Male

KW - Parents/psychology

KW - Personal Satisfaction

KW - Power (Psychology)

KW - Prospective Studies

KW - Psychometrics

KW - Quality Improvement

KW - Quality Indicators, Health Care

KW - Reproducibility of Results

KW - Surveys and Questionnaires

KW - Translations

U2 - 10.1097/PCC.0000000000001031

DO - 10.1097/PCC.0000000000001031

M3 - Article

C2 - 27977540

VL - 18

SP - e77-e85

JO - Pediatric Critical Care Medicine

JF - Pediatric Critical Care Medicine

SN - 1529-7535

IS - 2

ER -