Enabling global clinical collaborations on identifiable patient data: The Minerva initiative

Romano Corrado

Research output: Contribution to journalComment/debate

Original languageEnglish
Article number611
JournalFrontiers in Genetics
Issue numberJUN
Publication statusPublished - Jan 1 2019


  • Consortium
  • Data protection
  • Data sharing
  • Facial features
  • Patient information
  • Phenotyping
  • Rare disease

ASJC Scopus subject areas

  • Molecular Medicine
  • Genetics
  • Genetics(clinical)

Cite this

Enabling global clinical collaborations on identifiable patient data : The Minerva initiative. / Romano Corrado.

In: Frontiers in Genetics, Vol. 10, No. JUN, 611, 01.01.2019.

Research output: Contribution to journalComment/debate

title = "Enabling global clinical collaborations on identifiable patient data: The Minerva initiative",
keywords = "Consortium, Data protection, Data sharing, Facial features, Patient information, Phenotyping, Rare disease",
author = "{Romano Corrado} and Christoffer Nell{\aa}ker and Alkuraya, {Fowzan S.} and Gareth Baynam and Raphael Bernier and Bernier, {Francois P.} and Vanessa Boulanger and Michael Brudno and Brunner, {Han G.} and Jill Clayton-Smith and Benjamin Cogn{\'e} and Dawkins, {Hugh J.} and Bert DeVries and Sofia Douzgou and Tracy Dudding and Eichler, {Evan E.} and Michael Ferlaino and Karen Fieggen and Firth, {Helen V.} and FitzPatrick, {David R.} and Dylan Gration and Tudor Groza and Haendel, {Melissa A.} and Nina Hallowell and Ada Hamosh and Jayne Hehir-Kwa and Hitz, {Marc Phillip} and Mark Hughes and Usha Kini and Tjitske Kleefstra and Kooy, {R. Frank} and Krawitz, {Peter M.} and S{\'e}bastien K{\"u}ry and Melissa Lees and Lyon, {Gholson J.} and Stanislas Lyonnet and Julien Marcadier and Stephen Meyn and Veronika Moslerov{\'a} and Politei, {Juan M.} and Poulton, {Cathryn C.} and Raymond, {F. Lucy} and Margot Reijnders and Robinson, {Peter N.} and Corrado Romano and Rose, {Catherine M.} and Sainsbury, {David C.} and Lyn Schofield and Sutton, {Vernon R.} and Marek Turnovec and {Van Dijck}, Anke",
year = "2019",
month = "1",
day = "1",
doi = "10.3389/fgene.2019.00611",
language = "English",
volume = "10",
journal = "Frontiers in Genetics",
issn = "1664-8021",
publisher = "Frontiers Media S. A.",
number = "JUN",



T1 - Enabling global clinical collaborations on identifiable patient data

T2 - The Minerva initiative

AU - Romano Corrado

AU - Nellåker, Christoffer

AU - Alkuraya, Fowzan S.

AU - Baynam, Gareth

AU - Bernier, Raphael

AU - Bernier, Francois P.

AU - Boulanger, Vanessa

AU - Brudno, Michael

AU - Brunner, Han G.

AU - Clayton-Smith, Jill

AU - Cogné, Benjamin

AU - Dawkins, Hugh J.

AU - DeVries, Bert

AU - Douzgou, Sofia

AU - Dudding, Tracy

AU - Eichler, Evan E.

AU - Ferlaino, Michael

AU - Fieggen, Karen

AU - Firth, Helen V.

AU - FitzPatrick, David R.

AU - Gration, Dylan

AU - Groza, Tudor

AU - Haendel, Melissa A.

AU - Hallowell, Nina

AU - Hamosh, Ada

AU - Hehir-Kwa, Jayne

AU - Hitz, Marc Phillip

AU - Hughes, Mark

AU - Kini, Usha

AU - Kleefstra, Tjitske

AU - Kooy, R. Frank

AU - Krawitz, Peter M.

AU - Küry, Sébastien

AU - Lees, Melissa

AU - Lyon, Gholson J.

AU - Lyonnet, Stanislas

AU - Marcadier, Julien

AU - Meyn, Stephen

AU - Moslerová, Veronika

AU - Politei, Juan M.

AU - Poulton, Cathryn C.

AU - Raymond, F. Lucy

AU - Reijnders, Margot

AU - Robinson, Peter N.

AU - Romano, Corrado

AU - Rose, Catherine M.

AU - Sainsbury, David C.

AU - Schofield, Lyn

AU - Sutton, Vernon R.

AU - Turnovec, Marek

AU - Van Dijck, Anke

PY - 2019/1/1

Y1 - 2019/1/1

KW - Consortium

KW - Data protection

KW - Data sharing

KW - Facial features

KW - Patient information

KW - Phenotyping

KW - Rare disease

UR - http://www.scopus.com/inward/record.url?scp=85069047288&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85069047288&partnerID=8YFLogxK

U2 - 10.3389/fgene.2019.00611

DO - 10.3389/fgene.2019.00611

M3 - Comment/debate

AN - SCOPUS:85069047288

VL - 10

JO - Frontiers in Genetics

JF - Frontiers in Genetics

SN - 1664-8021


M1 - 611

ER -