End of life in children with cancer: Experience at the Pediatric Oncology Department of the Istituto Nazionale Tumori in Milan

Silvia Beretta, Daniela Polastri, Carlo Alfredo Clerici, Michela Casanova, Graziella Cefalo, Andrea Ferrari, Roberto Luksch, Maura Massimino, Cristina Meazza, Marta Giorgia Podda, Filippo Spreafico, Monica Terenziani, Franca Fossati Bellani

Research output: Contribution to journalArticle

Abstract

Background. Coping with end-stage pediatric cancer patients and the related bereavement is a challenge for all the caregivers involved. Procedure. Forty-seven cancer patients who died in 2006 were assessed as concerns the main place of care in the end stage of their disease, their symptoms, the palliative treatments received, and the site of death. Results. The end stage was managed at the Istituto Nazionale Tumori Pediatric Oncology Department in 61% of cases, at home in 26%, and in hospices or other hospital facilities in 11%. Pain was the most common symptom, followed by asthenia, anorexia, dyspnea, and nausea/vomiting. About half the patients died at home, 8.5% at our institute, 43% at other hospitals, and 8.5% in hospices. Conclusions. The care of pediatric cancer patients during the end stage of their disease is the responsibility of the caregivers who have followed them up since their diagnosis. However, it would be useful to establish an exchange of information and expertise between pediatric oncologists and the other facilities involved (hospices, other hospitals) or people assisting patients at home (family, family pediatrician/general practitioner GP).

Original languageEnglish
Pages (from-to)88-91
Number of pages4
JournalPediatric Blood and Cancer
Volume54
Issue number1
DOIs
Publication statusPublished - Jan 2010

Keywords

  • Cancer
  • Children
  • Palliative care

ASJC Scopus subject areas

  • Medicine(all)
  • Hematology
  • Oncology
  • Pediatrics, Perinatology, and Child Health

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