Evaluating health-related quality of life, work ability, and disability in pulmonary arterial hypertension: An unmet need

Melvyn Rubenfire, Giuseppina Lippo, Bruno D. Bodini, Francesco Blasi, Luigi Allegra, Eduardo Bossone

Research output: Contribution to journalArticlepeer-review

Abstract

To our knowledge, there are no specific and validated measures of quality of life (QoL) or degree of disability for pulmonary arterial hypertension (PAH). A review of the literature shows that, with the exception of one recently designed specifically for pulmonary hypertension, QoL questionnaires used in PAH studies are generic measures. These are selected because of shared symptoms that do not necessarily correlate well with functional or physiologic measures and have not been validated for applicability in PAH. In this review, we present the available QoL tools for pulmonary artery hypertension and describe the need for more specific instruments that consider the physical and emotional implications of the diseases associated with PAH and the impact of various treatment options. We also discuss the impact of PAH on work ability and the need for provisions to address medical disability status and Social Security benefit status.

Original languageEnglish
Pages (from-to)597-603
Number of pages7
JournalChest
Volume136
Issue number2
DOIs
Publication statusPublished - Aug 1 2009

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Critical Care and Intensive Care Medicine
  • Cardiology and Cardiovascular Medicine

Fingerprint Dive into the research topics of 'Evaluating health-related quality of life, work ability, and disability in pulmonary arterial hypertension: An unmet need'. Together they form a unique fingerprint.

Cite this