Evolving Services for Adolescents with Cancer in Italy: Access to Pediatric Oncology Centers and Dedicated Projects

Andrea Ferrari, Paola Quarello, Maurizio Mascarin, Giuseppe M Milano, Assunta Tornesello, Marina Bertolotti, Marco Spinelli, Pamela Ballotta, Marco Read Borghi, Milena Maule, Maria Luisa Mosso, Franco Merletti, Marco Zecca, Andrea Pession

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Abstract

Purpose: To describe how the provision of services for adolescents with cancer has evolved in Italy, the study evaluated access to pediatric oncology centers affiliated to the national cooperative group Associazione Italiana Ematologia Oncologia Pediatrica (AIEOP), and the development of dedicated local projects. Methods: We calculated the observed/expected (O/E) ratio of adolescent patients (15-19 years old) admitted to AIEOP centers during the years 2013-2017. Observed cases were obtained from the AIEOP database (model 1.01). Expected cases were calculated on the incidence rates derived from the population-based registries. In addition, a questionnaire investigated the presence of any formal upper age limits for admitting patients, and to the development of local projects. Results: In the years 2013-2017, 9534 cases of cancer were registered in the AIEOP database, that is, 8031 children (0-14 years) and 1503 adolescents (15-19 years). The overall O/E ratio was 0.81, that is, 1.06 for children, and 0.37 for adolescents, and differed according the different tumor types. Concerning the questionnaire, 26% of centers reported age limits
Original languageEnglish
Pages (from-to)10.1089/jayao.2019.0134
Number of pages6
JournalJournal of Adolescent and Young Adult Oncology
DOIs
Publication statusPublished - Nov 20 2019

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Keywords

  • access to care
  • adolescents with cancer
  • age limits
  • dedicated project
  • expected cases
  • national program

Cite this

Ferrari, A., Quarello, P., Mascarin, M., Milano, G. M., Tornesello, A., Bertolotti, M., Spinelli, M., Ballotta, P., Read Borghi, M., Maule, M., Mosso, M. L., Merletti, F., Zecca, M., & Pession, A. (2019). Evolving Services for Adolescents with Cancer in Italy: Access to Pediatric Oncology Centers and Dedicated Projects. Journal of Adolescent and Young Adult Oncology, 10.1089/jayao.2019.0134. https://doi.org/10.1089/jayao.2019.0134