Expectations of survivors, caregivers and healthcare providers for testicular cancer survivorship and quality of life

Silvia De Padova, Giovanni Rosti, Emanuela Scarpi, Roberto Salvioni, Dino Amadori, Ugo De Giorgi

Research output: Contribution to journalArticlepeer-review

Abstract

Aims and background. We compared expectations of testicular cancer survivors and their caregivers with those of healthcare providers for testicular cancer survivorship care and quality of life to identify experiences and potential expectations in which there was disagreement. Methods. In a meeting with testicular cancer survivors, their caregivers, and care providers with an interest in testicular cancer, we distributed a structured questionnaire with 24 questions divided into 3 sections: personal information, information on the quality of life of survivors, information on the role of care providers, general practitioners and health-related internet sources in the expectations of survivors. Results. The overall response rate was 91% (29 of 32) for patients and 100% (14 of 14) for caregivers with all questionnaires evaluable, while among 60 care providers, 42 (70%) responded with 41 (68%) evaluable. Between patients/caregivers and care providers, expectations were most incongruent for the role of primary care physicians in testicular cancer follow-up: important/fundamental for 58% of patients/caregivers and 88% of care providers (P = 0.010). Comparing patients/caregivers with care providers in their views of the experience of testicular cancer survivorship, we found several discrepancies: the fear of recurrence was high/very high for 18 of 43 (42%) patients/caregivers and in the perception of 40 of 41 (98%) care providers (P

Original languageEnglish
Pages (from-to)367-373
Number of pages7
JournalTumori
Volume97
Issue number3
DOIs
Publication statusPublished - May 2011

Keywords

  • Caregiver
  • Quality of life
  • Survivors
  • Testicular cancer

ASJC Scopus subject areas

  • Cancer Research
  • Oncology

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