Family-centred care for children and young people with cerebral palsy: results from an Italian multicenter observational study

A. Molinaro, E. Fedrizzi, S. Calza, E. Pagliano, G. Jessica, E. Fazzi, Antonio Trabacca, Teresa Vespino, Francesca Gallino, Ambra Villani, Odoardo Picciolini, Massimo Cozzaglio, E. Pagliano, Giovanni Baranello, Fabio Zambonin, Fiorese Daniela, Pasquale Mandalari, Laura Mirabile, Renata Nacinovich, Fiorella BroggiGianni De Polo, Flavia Da Ruos, Monica Cazzagon, Marina Godio, Chiara Piantoni, Elvira Dusi, Michela Marzaroli, Donatella Fusari, Daniele Arisi, Stefania Magri, Nerina Landi, Luisa Roberti, Sabrina Signorini, Antonella Luparia, Maurizio Sabbadini, Nadia Riccioli, Anna Carla Turconi, Francesca Molteni, Marco Marcelli, Carlo Di Brina, GIPCI Study Group

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Background: Family-centred care (FCC) is recognized as the model of best practice for the provision of services for children who have physical disabilities and their families. Objective: To assess the overall perception of FCC provided in an Italian network of 17 rehabilitation services, as perceived by parents of children with cerebral palsy and professionals, and to explore whether children, families, service providers and service-related characteristics influence parent satisfaction regarding service provision in an FCC practice. Methods: The Measure of Processes of Care (MPOC-20) for parents/caregivers and the Measure of Processes of Care for Service Providers (MPOC-SP) for healthcare providers were used. For the purposes of the study, an ad hoc information form was developed to collect information concerning children, families, service providers and services. Results: A total of 382 parents/caregivers and 269 healthcare providers completed the MPOC questionnaires. Parents and service providers both identified the domains for enabling partnerships and interpersonal sensitivity as a strength, while the domain relating to general information was always scored the lowest. An advanced maternal age, being a single parent, being unemployed and having lower socio-economic status were factors identified as individually predictive of lower FCC scores on the MPOC-20. Higher intensity treatment, inpatient services, primary healthcare settings and settings identified with limited financial resources and reduced space/time for each family were other variables significantly associated with less favourable MPOC-20 ratings. Conclusions: The perception of FCC provided was fairly positive, with some areas of improvement, such as the domain of provision of information. Professionals should, therefore, provide better communication and take more time in giving information and attention to parents. Potential sources of variation in parent perceptions of FCC based on family characteristics and the organization of services highlight the importance the need to support services through the provision of greater financial and human resources.

Original languageEnglish
Pages (from-to)588-597
Number of pages10
JournalChild: Care, Health and Development
Volume43
Issue number4
DOIs
Publication statusPublished - Jul 1 2017

Fingerprint

Cerebral Palsy
Child Care
Multicenter Studies
Observational Studies
Parents
Process Assessment (Health Care)
Health Personnel
Caregivers
Single Parent
Maternal Age
Practice Guidelines
Inpatients
Primary Health Care
Rehabilitation
Communication
Economics

Keywords

  • cerebral palsy
  • family-centred care
  • family-centred service
  • MPOC-20
  • MPOC-SP
  • service delivery

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology
  • Public Health, Environmental and Occupational Health

Cite this

Family-centred care for children and young people with cerebral palsy : results from an Italian multicenter observational study. / Molinaro, A.; Fedrizzi, E.; Calza, S.; Pagliano, E.; Jessica, G.; Fazzi, E.; Trabacca, Antonio; Vespino, Teresa; Gallino, Francesca; Villani, Ambra; Picciolini, Odoardo; Cozzaglio, Massimo; Pagliano, E.; Baranello, Giovanni; Zambonin, Fabio; Daniela, Fiorese; Mandalari, Pasquale; Mirabile, Laura; Nacinovich, Renata; Broggi, Fiorella; De Polo, Gianni; Da Ruos, Flavia; Cazzagon, Monica; Godio, Marina; Piantoni, Chiara; Dusi, Elvira; Marzaroli, Michela; Fusari, Donatella; Arisi, Daniele; Magri, Stefania; Landi, Nerina; Roberti, Luisa; Signorini, Sabrina; Luparia, Antonella; Sabbadini, Maurizio; Riccioli, Nadia; Turconi, Anna Carla; Molteni, Francesca; Marcelli, Marco; Di Brina, Carlo; GIPCI Study Group.

In: Child: Care, Health and Development, Vol. 43, No. 4, 01.07.2017, p. 588-597.

Research output: Contribution to journalArticle

Molinaro, A, Fedrizzi, E, Calza, S, Pagliano, E, Jessica, G, Fazzi, E, Trabacca, A, Vespino, T, Gallino, F, Villani, A, Picciolini, O, Cozzaglio, M, Pagliano, E, Baranello, G, Zambonin, F, Daniela, F, Mandalari, P, Mirabile, L, Nacinovich, R, Broggi, F, De Polo, G, Da Ruos, F, Cazzagon, M, Godio, M, Piantoni, C, Dusi, E, Marzaroli, M, Fusari, D, Arisi, D, Magri, S, Landi, N, Roberti, L, Signorini, S, Luparia, A, Sabbadini, M, Riccioli, N, Turconi, AC, Molteni, F, Marcelli, M, Di Brina, C & GIPCI Study Group 2017, 'Family-centred care for children and young people with cerebral palsy: results from an Italian multicenter observational study', Child: Care, Health and Development, vol. 43, no. 4, pp. 588-597. https://doi.org/10.1111/cch.12449
Molinaro, A. ; Fedrizzi, E. ; Calza, S. ; Pagliano, E. ; Jessica, G. ; Fazzi, E. ; Trabacca, Antonio ; Vespino, Teresa ; Gallino, Francesca ; Villani, Ambra ; Picciolini, Odoardo ; Cozzaglio, Massimo ; Pagliano, E. ; Baranello, Giovanni ; Zambonin, Fabio ; Daniela, Fiorese ; Mandalari, Pasquale ; Mirabile, Laura ; Nacinovich, Renata ; Broggi, Fiorella ; De Polo, Gianni ; Da Ruos, Flavia ; Cazzagon, Monica ; Godio, Marina ; Piantoni, Chiara ; Dusi, Elvira ; Marzaroli, Michela ; Fusari, Donatella ; Arisi, Daniele ; Magri, Stefania ; Landi, Nerina ; Roberti, Luisa ; Signorini, Sabrina ; Luparia, Antonella ; Sabbadini, Maurizio ; Riccioli, Nadia ; Turconi, Anna Carla ; Molteni, Francesca ; Marcelli, Marco ; Di Brina, Carlo ; GIPCI Study Group. / Family-centred care for children and young people with cerebral palsy : results from an Italian multicenter observational study. In: Child: Care, Health and Development. 2017 ; Vol. 43, No. 4. pp. 588-597.
@article{02950db8703945bdbd9cef45045f7676,
title = "Family-centred care for children and young people with cerebral palsy: results from an Italian multicenter observational study",
abstract = "Background: Family-centred care (FCC) is recognized as the model of best practice for the provision of services for children who have physical disabilities and their families. Objective: To assess the overall perception of FCC provided in an Italian network of 17 rehabilitation services, as perceived by parents of children with cerebral palsy and professionals, and to explore whether children, families, service providers and service-related characteristics influence parent satisfaction regarding service provision in an FCC practice. Methods: The Measure of Processes of Care (MPOC-20) for parents/caregivers and the Measure of Processes of Care for Service Providers (MPOC-SP) for healthcare providers were used. For the purposes of the study, an ad hoc information form was developed to collect information concerning children, families, service providers and services. Results: A total of 382 parents/caregivers and 269 healthcare providers completed the MPOC questionnaires. Parents and service providers both identified the domains for enabling partnerships and interpersonal sensitivity as a strength, while the domain relating to general information was always scored the lowest. An advanced maternal age, being a single parent, being unemployed and having lower socio-economic status were factors identified as individually predictive of lower FCC scores on the MPOC-20. Higher intensity treatment, inpatient services, primary healthcare settings and settings identified with limited financial resources and reduced space/time for each family were other variables significantly associated with less favourable MPOC-20 ratings. Conclusions: The perception of FCC provided was fairly positive, with some areas of improvement, such as the domain of provision of information. Professionals should, therefore, provide better communication and take more time in giving information and attention to parents. Potential sources of variation in parent perceptions of FCC based on family characteristics and the organization of services highlight the importance the need to support services through the provision of greater financial and human resources.",
keywords = "cerebral palsy, family-centred care, family-centred service, MPOC-20, MPOC-SP, service delivery",
author = "A. Molinaro and E. Fedrizzi and S. Calza and E. Pagliano and G. Jessica and E. Fazzi and Antonio Trabacca and Teresa Vespino and Francesca Gallino and Ambra Villani and Odoardo Picciolini and Massimo Cozzaglio and E. Pagliano and Giovanni Baranello and Fabio Zambonin and Fiorese Daniela and Pasquale Mandalari and Laura Mirabile and Renata Nacinovich and Fiorella Broggi and {De Polo}, Gianni and {Da Ruos}, Flavia and Monica Cazzagon and Marina Godio and Chiara Piantoni and Elvira Dusi and Michela Marzaroli and Donatella Fusari and Daniele Arisi and Stefania Magri and Nerina Landi and Luisa Roberti and Sabrina Signorini and Antonella Luparia and Maurizio Sabbadini and Nadia Riccioli and Turconi, {Anna Carla} and Francesca Molteni and Marco Marcelli and {Di Brina}, Carlo and {GIPCI Study Group}",
year = "2017",
month = "7",
day = "1",
doi = "10.1111/cch.12449",
language = "English",
volume = "43",
pages = "588--597",
journal = "Child: Care, Health and Development",
issn = "0305-1862",
publisher = "Wiley-Blackwell",
number = "4",

}

TY - JOUR

T1 - Family-centred care for children and young people with cerebral palsy

T2 - results from an Italian multicenter observational study

AU - Molinaro, A.

AU - Fedrizzi, E.

AU - Calza, S.

AU - Pagliano, E.

AU - Jessica, G.

AU - Fazzi, E.

AU - Trabacca, Antonio

AU - Vespino, Teresa

AU - Gallino, Francesca

AU - Villani, Ambra

AU - Picciolini, Odoardo

AU - Cozzaglio, Massimo

AU - Pagliano, E.

AU - Baranello, Giovanni

AU - Zambonin, Fabio

AU - Daniela, Fiorese

AU - Mandalari, Pasquale

AU - Mirabile, Laura

AU - Nacinovich, Renata

AU - Broggi, Fiorella

AU - De Polo, Gianni

AU - Da Ruos, Flavia

AU - Cazzagon, Monica

AU - Godio, Marina

AU - Piantoni, Chiara

AU - Dusi, Elvira

AU - Marzaroli, Michela

AU - Fusari, Donatella

AU - Arisi, Daniele

AU - Magri, Stefania

AU - Landi, Nerina

AU - Roberti, Luisa

AU - Signorini, Sabrina

AU - Luparia, Antonella

AU - Sabbadini, Maurizio

AU - Riccioli, Nadia

AU - Turconi, Anna Carla

AU - Molteni, Francesca

AU - Marcelli, Marco

AU - Di Brina, Carlo

AU - GIPCI Study Group

PY - 2017/7/1

Y1 - 2017/7/1

N2 - Background: Family-centred care (FCC) is recognized as the model of best practice for the provision of services for children who have physical disabilities and their families. Objective: To assess the overall perception of FCC provided in an Italian network of 17 rehabilitation services, as perceived by parents of children with cerebral palsy and professionals, and to explore whether children, families, service providers and service-related characteristics influence parent satisfaction regarding service provision in an FCC practice. Methods: The Measure of Processes of Care (MPOC-20) for parents/caregivers and the Measure of Processes of Care for Service Providers (MPOC-SP) for healthcare providers were used. For the purposes of the study, an ad hoc information form was developed to collect information concerning children, families, service providers and services. Results: A total of 382 parents/caregivers and 269 healthcare providers completed the MPOC questionnaires. Parents and service providers both identified the domains for enabling partnerships and interpersonal sensitivity as a strength, while the domain relating to general information was always scored the lowest. An advanced maternal age, being a single parent, being unemployed and having lower socio-economic status were factors identified as individually predictive of lower FCC scores on the MPOC-20. Higher intensity treatment, inpatient services, primary healthcare settings and settings identified with limited financial resources and reduced space/time for each family were other variables significantly associated with less favourable MPOC-20 ratings. Conclusions: The perception of FCC provided was fairly positive, with some areas of improvement, such as the domain of provision of information. Professionals should, therefore, provide better communication and take more time in giving information and attention to parents. Potential sources of variation in parent perceptions of FCC based on family characteristics and the organization of services highlight the importance the need to support services through the provision of greater financial and human resources.

AB - Background: Family-centred care (FCC) is recognized as the model of best practice for the provision of services for children who have physical disabilities and their families. Objective: To assess the overall perception of FCC provided in an Italian network of 17 rehabilitation services, as perceived by parents of children with cerebral palsy and professionals, and to explore whether children, families, service providers and service-related characteristics influence parent satisfaction regarding service provision in an FCC practice. Methods: The Measure of Processes of Care (MPOC-20) for parents/caregivers and the Measure of Processes of Care for Service Providers (MPOC-SP) for healthcare providers were used. For the purposes of the study, an ad hoc information form was developed to collect information concerning children, families, service providers and services. Results: A total of 382 parents/caregivers and 269 healthcare providers completed the MPOC questionnaires. Parents and service providers both identified the domains for enabling partnerships and interpersonal sensitivity as a strength, while the domain relating to general information was always scored the lowest. An advanced maternal age, being a single parent, being unemployed and having lower socio-economic status were factors identified as individually predictive of lower FCC scores on the MPOC-20. Higher intensity treatment, inpatient services, primary healthcare settings and settings identified with limited financial resources and reduced space/time for each family were other variables significantly associated with less favourable MPOC-20 ratings. Conclusions: The perception of FCC provided was fairly positive, with some areas of improvement, such as the domain of provision of information. Professionals should, therefore, provide better communication and take more time in giving information and attention to parents. Potential sources of variation in parent perceptions of FCC based on family characteristics and the organization of services highlight the importance the need to support services through the provision of greater financial and human resources.

KW - cerebral palsy

KW - family-centred care

KW - family-centred service

KW - MPOC-20

KW - MPOC-SP

KW - service delivery

UR - http://www.scopus.com/inward/record.url?scp=85014767586&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85014767586&partnerID=8YFLogxK

U2 - 10.1111/cch.12449

DO - 10.1111/cch.12449

M3 - Article

AN - SCOPUS:85014767586

VL - 43

SP - 588

EP - 597

JO - Child: Care, Health and Development

JF - Child: Care, Health and Development

SN - 0305-1862

IS - 4

ER -