Future MS care: A consensus statement of the MS in the 21st Century Steering Group

Peter Rieckmann, Alexey Boyko, Diego Centonze, Alasdair Coles, Irina Elovaara, Eva Havrdová, Otto Hommes, Jacques Lelorier, Sarah A. Morrow, Celia Oreja-Guevara, Nick Rijke, Sven Schippling

Research output: Contribution to journalArticle

19 Citations (Scopus)

Abstract

The "MS in the 21st Century" initiative was established with the purpose of (1) defining how multiple sclerosis (MS) treatment and standards of care should look in the 21st century; (2) developing a minimum standard of care across the world; and (3) motivating the broad MS community to align standards of care and challenge the current treatment paradigm. The aim was to develop a consensus statement to reach and influence the broader MS community. An expert steering group from Europe and Canada - consisting of neurologists, patient advocates, a pharmacoepidemiologist/pharmacoeconomist, and representatives from national MS centers - participated in a series of workshop-driven meetings between February 2011 and 2012. After three phases of discussions, the steering group identified that the overall vision for future care of MS should be full access to personalized treatment, with reimbursement, to achieve freedom from disease. They constructed seven overall principles that support this vision: personalized care, patient engagement, commitment to research, regulatory body education and reimbursement issues, new endpoints in clinical trials, more therapy options, and MS centers of excellence. This consensus statement outlines the key aspects of the seven principles that need to be addressed. The "MS in the 21st Century Steering Group" hopes that this consensus statement acts as a call to action for healthcare providers and decision-makers to address simultaneously the overarching principles that will guide patient management in order to improve outcomes for people with MS.

Original languageEnglish
Pages (from-to)462-469
Number of pages8
JournalJournal of Neurology
Volume260
Issue number2
DOIs
Publication statusPublished - Feb 2013

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Multiple Sclerosis
Consensus
Standard of Care
Hope
Education
Patient Participation
Therapeutics
Health Personnel
Canada
Clinical Trials
Research

Keywords

  • Care
  • Consensus statement
  • Management
  • Multiple sclerosis

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology

Cite this

Rieckmann, P., Boyko, A., Centonze, D., Coles, A., Elovaara, I., Havrdová, E., ... Schippling, S. (2013). Future MS care: A consensus statement of the MS in the 21st Century Steering Group. Journal of Neurology, 260(2), 462-469. https://doi.org/10.1007/s00415-012-6656-6

Future MS care : A consensus statement of the MS in the 21st Century Steering Group. / Rieckmann, Peter; Boyko, Alexey; Centonze, Diego; Coles, Alasdair; Elovaara, Irina; Havrdová, Eva; Hommes, Otto; Lelorier, Jacques; Morrow, Sarah A.; Oreja-Guevara, Celia; Rijke, Nick; Schippling, Sven.

In: Journal of Neurology, Vol. 260, No. 2, 02.2013, p. 462-469.

Research output: Contribution to journalArticle

Rieckmann, P, Boyko, A, Centonze, D, Coles, A, Elovaara, I, Havrdová, E, Hommes, O, Lelorier, J, Morrow, SA, Oreja-Guevara, C, Rijke, N & Schippling, S 2013, 'Future MS care: A consensus statement of the MS in the 21st Century Steering Group', Journal of Neurology, vol. 260, no. 2, pp. 462-469. https://doi.org/10.1007/s00415-012-6656-6
Rieckmann, Peter ; Boyko, Alexey ; Centonze, Diego ; Coles, Alasdair ; Elovaara, Irina ; Havrdová, Eva ; Hommes, Otto ; Lelorier, Jacques ; Morrow, Sarah A. ; Oreja-Guevara, Celia ; Rijke, Nick ; Schippling, Sven. / Future MS care : A consensus statement of the MS in the 21st Century Steering Group. In: Journal of Neurology. 2013 ; Vol. 260, No. 2. pp. 462-469.
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