Health-related quality of life among patients with primary sclerosing cholangitis

Johanna Haapamäki, Andrea Tenca, Harri Sintonen, Nina Barner-Rasmussen, Martti A. Färkkilä

Research output: Contribution to journalArticlepeer-review


Background & Aims: To assess health-related quality of life (HRQoL) of patients with primary sclerosing cholangitis (PSC), and to compare it with that of the general population. Also, to examine changes in HRQoL in newly diagnosed PSC patients at a follow-up 1-2 years later, and to compare their HRQoL with HRQoL of newly diagnosed inflammatory bowel disease (IBD) patients. Furthermore, sources of and need for disease-related information among PSC patients were surveyed. Methods: Primary sclerosing cholangitis patients filled in the survey questionnaire when attending an endoscopic retrograde cholangiography examination. The 15D served as a general HRQoL instrument. The follow-up questionnaire was mailed to the newly diagnosed patients 1-2 years later. Results: No significant difference was seen in 15D scores between PSC patients and general population, but the dimensions of excretion (P 

Original languageEnglish
Pages (from-to)2194-2201
Number of pages8
JournalLiver International
Issue number9
Publication statusPublished - Sep 1 2015


  • Endoscopic retrograde cholangiography
  • Health-related quality of life
  • Inflammatory bowel disease
  • Primary sclerosing cholangitis

ASJC Scopus subject areas

  • Hepatology


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