Health systems sustainability in the framework of rare diseases actions. Actions on educational programmes and training for professionals and patients

Research output: Contribution to journalReview article

Abstract

Rare disease community is one of the largest patient populations in the world estimated to be 350 million of people. Collectively common, rare diseases pose a significant medical and economic burden for health systems worldwide. In this respect, rare diseases are considered a priority of public health. The study is a review aimed to determine whether there is evidence that education plays a key role in building sustainable health system and will allow better health and well-being for people with rare diseases to be achieved. This review shows evidence that providing quality education through different ways and actions the lives of people suffering from a rare disease and their families can be improved.

Original languageEnglish
Pages (from-to)265-269
Number of pages5
JournalAnnali dell'Istituto Superiore di Sanita
Volume55
Issue number3
DOIs
Publication statusPublished - Sep 26 2019

Keywords

  • Delivery of Health Care/economics
  • Education, Medical/economics
  • Humans
  • Patient Education as Topic/economics
  • Public Health
  • Rare Diseases/therapy

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