Honesty and hope: Announcement of diagnosis in ALS

Vincenzo Silani, Gian Domenico Borasio

Research output: Contribution to journalArticle

Abstract

Informing patients and their families about a diagnosis such as amyotrophic lateral sclerosis (ALS) is a daunting task for any physician. The way the diagnosis is communicated will have a major impact on the physician- patient relationship and the attitude of the patient toward the disease and toward symptomatic treatment measures. Breaking the news can be truly defined as the starting point of palliative care in ALS. It is an ongoing information process which, by its nature, escapes narrow definitions or standardization attempts. Nevertheless, a number of techniques exist to facilitate the process and ease the burden for physicians, patients, and families. We believe that the terminal phase should be discussed at the latest when first respiratory symptoms appear, to prevent unwarranted fears of 'choking to death'.

Original languageEnglish
JournalNeurology
Volume53
Issue number8 SUPPL.
Publication statusPublished - 1999

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Hope
Amyotrophic Lateral Sclerosis
Point-of-Care Systems
Physician-Patient Relations
Family Physicians
Airway Obstruction
Palliative Care
Fear
Physicians
Therapeutics

ASJC Scopus subject areas

  • Neuroscience(all)

Cite this

Honesty and hope : Announcement of diagnosis in ALS. / Silani, Vincenzo; Borasio, Gian Domenico.

In: Neurology, Vol. 53, No. 8 SUPPL., 1999.

Research output: Contribution to journalArticle

Silani, V & Borasio, GD 1999, 'Honesty and hope: Announcement of diagnosis in ALS', Neurology, vol. 53, no. 8 SUPPL..
Silani, Vincenzo ; Borasio, Gian Domenico. / Honesty and hope : Announcement of diagnosis in ALS. In: Neurology. 1999 ; Vol. 53, No. 8 SUPPL.
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