Abstract
To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75 ± 9.29 years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition. 80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability.
| Original language | English |
|---|---|
| Pages (from-to) | 125-131 |
| Number of pages | 7 |
| Journal | Neurological Sciences |
| Volume | 32 |
| Issue number | 1 |
| DOIs | |
| Publication status | Published - Feb 2011 |
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Keywords
- Familiarity
- Parkinsonism
- Quality of life
- Social habits
- Unmet needs
- Work
ASJC Scopus subject areas
- Clinical Neurology
- Psychiatry and Mental health
- Dermatology
Cite this
How parkinsonism influences life : The patients' point of view. / Martignoni, E.; Citterio, Antonietta; Zangaglia, R.; Godi, L.; Pacchetti, C.; Fundarò, C.; Corengia, E.; Bono, G.; Nappi, G.
In: Neurological Sciences, Vol. 32, No. 1, 02.2011, p. 125-131.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - How parkinsonism influences life
T2 - The patients' point of view
AU - Martignoni, E.
AU - Citterio, Antonietta
AU - Zangaglia, R.
AU - Godi, L.
AU - Pacchetti, C.
AU - Fundarò, C.
AU - Corengia, E.
AU - Bono, G.
AU - Nappi, G.
PY - 2011/2
Y1 - 2011/2
N2 - To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75 ± 9.29 years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition. 80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability.
AB - To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75 ± 9.29 years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition. 80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability.
KW - Familiarity
KW - Parkinsonism
KW - Quality of life
KW - Social habits
KW - Unmet needs
KW - Work
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UR - http://www.scopus.com/inward/citedby.url?scp=79551579940&partnerID=8YFLogxK
U2 - 10.1007/s10072-010-0435-x
DO - 10.1007/s10072-010-0435-x
M3 - Article
VL - 32
SP - 125
EP - 131
JO - Neurological Sciences
JF - Neurological Sciences
SN - 1590-1874
IS - 1
ER -