How parkinsonism influences life

The patients' point of view

E. Martignoni, Antonietta Citterio, R. Zangaglia, L. Godi, C. Pacchetti, C. Fundarò, E. Corengia, G. Bono, G. Nappi

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75 ± 9.29 years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition. 80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability.

Original languageEnglish
Pages (from-to)125-131
Number of pages7
JournalNeurological Sciences
Volume32
Issue number1
DOIs
Publication statusPublished - Feb 2011

Fingerprint

Aptitude
Parkinsonian Disorders
Caregivers
Habits
Pharmaceutical Preparations
Surveys and Questionnaires

Keywords

  • Familiarity
  • Parkinsonism
  • Quality of life
  • Social habits
  • Unmet needs
  • Work

ASJC Scopus subject areas

  • Clinical Neurology
  • Psychiatry and Mental health
  • Dermatology

Cite this

How parkinsonism influences life : The patients' point of view. / Martignoni, E.; Citterio, Antonietta; Zangaglia, R.; Godi, L.; Pacchetti, C.; Fundarò, C.; Corengia, E.; Bono, G.; Nappi, G.

In: Neurological Sciences, Vol. 32, No. 1, 02.2011, p. 125-131.

Research output: Contribution to journalArticle

Martignoni, E, Citterio, A, Zangaglia, R, Godi, L, Pacchetti, C, Fundarò, C, Corengia, E, Bono, G & Nappi, G 2011, 'How parkinsonism influences life: The patients' point of view', Neurological Sciences, vol. 32, no. 1, pp. 125-131. https://doi.org/10.1007/s10072-010-0435-x
Martignoni, E. ; Citterio, Antonietta ; Zangaglia, R. ; Godi, L. ; Pacchetti, C. ; Fundarò, C. ; Corengia, E. ; Bono, G. ; Nappi, G. / How parkinsonism influences life : The patients' point of view. In: Neurological Sciences. 2011 ; Vol. 32, No. 1. pp. 125-131.
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