How parkinsonism influences life: The patients' point of view

E. Martignoni, Antonietta Citterio, R. Zangaglia, L. Godi, C. Pacchetti, C. Fundarò, E. Corengia, G. Bono, G. Nappi

Research output: Contribution to journalArticlepeer-review

Abstract

To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75 ± 9.29 years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition. 80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability.

Original languageEnglish
Pages (from-to)125-131
Number of pages7
JournalNeurological Sciences
Volume32
Issue number1
DOIs
Publication statusPublished - Feb 2011

Keywords

  • Familiarity
  • Parkinsonism
  • Quality of life
  • Social habits
  • Unmet needs
  • Work

ASJC Scopus subject areas

  • Clinical Neurology
  • Psychiatry and Mental health
  • Dermatology

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