Abstract
BACKGROUND: The objective of this work was to evaluate the time course of clinical and healthrelated quality of life outcomes of long-stay ICU survivors’ and caregivers’ burden. METHODS: The study included 23 subjects of mixed diagnosis (66 ± 11 y, body mass index 26.5 ± 5.6 kg/m2) with a recent episode of acute respiratory failure needing in-hospital rehabilitation. Subjects and caregivers were evaluated at hospital discharge (T0, n = 23) and 6 months later (T6, n ± 16). At T0 and T6, subjects’ clinical status (Dependence Nursing Scale), FVC (percent-of-predicted FVC and percent-of-predicted FEV), maximum inspiratory/expiratory pressures, effort tolerance (sitto- stand, Takahashi test, 6-min walking distance), and disability (Barthel index) were evaluated. EuroQol-5D (EQ-5D), McGill Quality of Life, General Perceived Self-Efficacy Scale, and Hospital Anxiety and Depression Scale (HADS-A/HADS-D) were assessed. Caregivers’ burden was measured by the Family Strain Questionnaire short form and Caregiver Needs Assessment. Correlation between subjects’ clinical status and caregiver assessments was performed at T0. RESULTS: At T0, subjects showed compromised EQ-5Dindex (0.42 ± 0.28); 69% of caregivers had high Family Strain Questionnaire and moderate Caregiver Needs Assessment scores (30 ± 13). EQ-5Dindex was significantly related to Dependence Nursing Scale score (P index (P
Original language | English |
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Pages (from-to) | 405-415 |
Number of pages | 11 |
Journal | Respiratory Care |
Volume | 61 |
Issue number | 4 |
DOIs | |
Publication status | Published - Apr 1 2016 |
Keywords
- Anxiety
- Depression
- Family caregiver
- Health-related quality of life
- Intensive care
- Respiratory failure
- Self-efficacy
ASJC Scopus subject areas
- Pulmonary and Respiratory Medicine
- Critical Care and Intensive Care Medicine