La qualità dell'informazione sulla fibrosi cistica net siti internet italiani

Translated title of the contribution: Information quality of Italian cystic fibrosis web sites

Research output: Contribution to journalArticle

Abstract

▶ Background. Taking into consideration the increased attention on cystic fibrosis care during the last few years in Italy, this study was performed to evaluate content quality, characteristics, and completeness of Italian cystic fibrosis websites. ▶ Methods. Google was used and retrieved websites were evaluated for the presence of predefined descriptive criteria and disease information. Their contents were compared to available evidence. ▶ Results. Thirty sites were evaluated. Few fulfilled the criteria, such as listing authors (24 sites) and citing references (10). The amount of disease information varied, but 23 provided treatment information. Of these, 11 were evaluated for adherence to guidelines and all disease information was found to be in agreement. One site provided very thorough information and was the most complete. Four sites were found to be half as complete as others. ▶ Conclusions. Patients can find accurate cystic fibrosis knowledge online, but may need to navigate between multiple sites to obtain complete coverage of disease information. In Italy, a network of association websites exuts to support patients and their families. Website quality could be improved in terms of documentation, or transparency, of the information provided in order to permit users to select well-documented, updated information.

Original languageItalian
Pages (from-to)92-100
Number of pages9
JournalRicerca e Pratica
Volume24
Issue number3
Publication statusPublished - May 2008

Fingerprint

Cystic Fibrosis
Italy
Guideline Adherence
Documentation
Therapeutics

ASJC Scopus subject areas

  • Pharmacology

Cite this

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title = "La qualit{\`a} dell'informazione sulla fibrosi cistica net siti internet italiani",
abstract = "▶ Background. Taking into consideration the increased attention on cystic fibrosis care during the last few years in Italy, this study was performed to evaluate content quality, characteristics, and completeness of Italian cystic fibrosis websites. ▶ Methods. Google was used and retrieved websites were evaluated for the presence of predefined descriptive criteria and disease information. Their contents were compared to available evidence. ▶ Results. Thirty sites were evaluated. Few fulfilled the criteria, such as listing authors (24 sites) and citing references (10). The amount of disease information varied, but 23 provided treatment information. Of these, 11 were evaluated for adherence to guidelines and all disease information was found to be in agreement. One site provided very thorough information and was the most complete. Four sites were found to be half as complete as others. ▶ Conclusions. Patients can find accurate cystic fibrosis knowledge online, but may need to navigate between multiple sites to obtain complete coverage of disease information. In Italy, a network of association websites exuts to support patients and their families. Website quality could be improved in terms of documentation, or transparency, of the information provided in order to permit users to select well-documented, updated information.",
keywords = "Cystic fibrosis, Health education, Internet, Italy, Public health informatics",
author = "Chiara Pandolfini and Antonio Clavenna and Maurizio Bonati",
year = "2008",
month = "5",
language = "Italian",
volume = "24",
pages = "92--100",
journal = "Ricerca e Pratica",
issn = "1120-379X",
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T1 - La qualità dell'informazione sulla fibrosi cistica net siti internet italiani

AU - Pandolfini, Chiara

AU - Clavenna, Antonio

AU - Bonati, Maurizio

PY - 2008/5

Y1 - 2008/5

N2 - ▶ Background. Taking into consideration the increased attention on cystic fibrosis care during the last few years in Italy, this study was performed to evaluate content quality, characteristics, and completeness of Italian cystic fibrosis websites. ▶ Methods. Google was used and retrieved websites were evaluated for the presence of predefined descriptive criteria and disease information. Their contents were compared to available evidence. ▶ Results. Thirty sites were evaluated. Few fulfilled the criteria, such as listing authors (24 sites) and citing references (10). The amount of disease information varied, but 23 provided treatment information. Of these, 11 were evaluated for adherence to guidelines and all disease information was found to be in agreement. One site provided very thorough information and was the most complete. Four sites were found to be half as complete as others. ▶ Conclusions. Patients can find accurate cystic fibrosis knowledge online, but may need to navigate between multiple sites to obtain complete coverage of disease information. In Italy, a network of association websites exuts to support patients and their families. Website quality could be improved in terms of documentation, or transparency, of the information provided in order to permit users to select well-documented, updated information.

AB - ▶ Background. Taking into consideration the increased attention on cystic fibrosis care during the last few years in Italy, this study was performed to evaluate content quality, characteristics, and completeness of Italian cystic fibrosis websites. ▶ Methods. Google was used and retrieved websites were evaluated for the presence of predefined descriptive criteria and disease information. Their contents were compared to available evidence. ▶ Results. Thirty sites were evaluated. Few fulfilled the criteria, such as listing authors (24 sites) and citing references (10). The amount of disease information varied, but 23 provided treatment information. Of these, 11 were evaluated for adherence to guidelines and all disease information was found to be in agreement. One site provided very thorough information and was the most complete. Four sites were found to be half as complete as others. ▶ Conclusions. Patients can find accurate cystic fibrosis knowledge online, but may need to navigate between multiple sites to obtain complete coverage of disease information. In Italy, a network of association websites exuts to support patients and their families. Website quality could be improved in terms of documentation, or transparency, of the information provided in order to permit users to select well-documented, updated information.

KW - Cystic fibrosis

KW - Health education

KW - Internet

KW - Italy

KW - Public health informatics

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