Last 3 months of life in home-ventilated patients: The family perception

M. Vitacca, M. Grassi, L. Barbano, G. Galavotti, C. Sturani, A. Vianello, E. Zanotti, L. Ballerin, A. Potena, R. Scala, A. Peratoner, P. Ceriana, L. Di Buono, E. Clini, N. Ambrosino, N. Hill, S. Nava

Research output: Contribution to journalArticlepeer-review

Abstract

We studied the family's perception of care in patients under home mechanical ventilation during the last 3 months of life. In 11 respiratory units, we submitted a 35-item questionnaire to relatives of 168 deceased patients exploring six domains: symptoms, awareness of disease, family burden, dying, medical and technical problems. Response rate was 98.8%. The majority of patients complained respiratory symptoms and were aware of the severity and prognosis of the disease. Family burden was high especially in relation to money need. During hospitalisation, 74.4% of patients were admitted to the intensive care unit (ICU). 78 patients died at home, 70 patients in a medical ward and 20 in ICU. 27% of patients received resuscitation manoeuvres. Hospitalisations and family economical burden were unrelated to diagnosis and mechanical ventilation. Families of the patients did not report major technical problems on the use of ventilators. In comparison with mechanical invasively ventilated patients, noninvasively ventilated patients were more aware of prognosis, used more respiratory drugs, changed ventilation time more frequently and died less frequently when under mechanical ventilation. We have presented good points and bad points regarding end-of-life care in home mechanically ventilated patients. Noninvasive ventilation use and diagnosis have impact on this burden. Copyright

Original languageEnglish
Pages (from-to)1064-1071
Number of pages8
JournalEuropean Respiratory Journal
Volume35
Issue number5
DOIs
Publication statusPublished - May 2010

Keywords

  • Chronic obstructive pulmonary disease
  • Dyspnoea
  • End-of-life
  • Ethics

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine

Fingerprint Dive into the research topics of 'Last 3 months of life in home-ventilated patients: The family perception'. Together they form a unique fingerprint.

Cite this