Management of respiratory complications and rehabilitation in individuals with muscular dystrophies: 1stConsensus Conference report from UILDM - Italian Muscular Dystrophy Association (Milan, January 25-26, 2019)

UILDM Respiratory group

Research output: Contribution to journalReview articlepeer-review

Abstract

Respiratory complications are common in the patient with muscular dystrophy. The periodic clinical and instrumental respiratory evaluation is extremely important. Despite the presence in the literature of updated guidelines, patient associations often report lack of knowledge of these pathologies, particularly in peripheral hospitals. The purpose of this work, inspired by the Italian Muscular Dystrophy Association (UILDM) is to improve management of respiratory problems necessary for the management of these patients complex. To this end, the main items that the specialist can meet in the follow-up of these pathologies have been analyzed and discussed, among which the respiratory basal evaluation, the criteria of adaptation to non-invasive ventilation, management of bronchial secretions, situations of respiratory emergency, indications for tracheostomy and the subject of advance directives of treatment (DAT).

Original languageEnglish
Pages (from-to)8-42
Number of pages35
JournalActa Myologica
Volume40
Issue number1
DOIs
Publication statusPublished - 2021

Keywords

  • Arterial blood gases
  • Cough efficacy
  • Cough machine
  • Invasive ventilation
  • Mechanical ventilation
  • Muscular dystrophy
  • Non-invasive ventilation
  • Polygraphy
  • Respiratory failure
  • Spirometry
  • Tracheostomy

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

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