Models of care for adolescent and young adult cancer programs

Michael Osborn, Rebecca Johnson, Kate Thompson, Antoinette Anazodo, Karen Albritton, Andrea Ferrari, Daniel Stark

Research output: Contribution to journalReview article

Abstract

This review draws on the experience of adolescent and young adult (AYA) cancer clinicians from Australia, the United States, and the United Kingdom to summarize common aspects of models of care implemented in their countries. The principles underpinning these models include patient- and family-focused care informed by an understanding of normal AYA development, enhancing existing adult or pediatric cancer services to meet the needs of AYA, and promoting collaboration between pediatric and adult oncologists. Common elements of AYA cancer care include establishing an AYA multidisciplinary team that integrates medical and psychosocial care, efforts to centralize complex care, providing access and equity for all AYA, promoting clinical trials, and helping facilitate transition to healthy survivorship. Several organizational approaches are described, noting that local program development depends on resources, infrastructure, and assessment of unmet needs within the region. The development of national networks provides opportunities for shared learning and approaches to evaluation.

Original languageEnglish
Article numbere27991
JournalPediatric Blood and Cancer
Volume66
Issue number12
DOIs
Publication statusPublished - Dec 1 2019

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Young Adult
Neoplasms
Pediatrics
Patient-Centered Care
Program Development
Needs Assessment
Survival Rate
Clinical Trials
Learning

Keywords

  • adolescents and young adults
  • clinical care
  • models of care

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Hematology
  • Oncology

Cite this

Osborn, M., Johnson, R., Thompson, K., Anazodo, A., Albritton, K., Ferrari, A., & Stark, D. (2019). Models of care for adolescent and young adult cancer programs. Pediatric Blood and Cancer, 66(12), [e27991]. https://doi.org/10.1002/pbc.27991

Models of care for adolescent and young adult cancer programs. / Osborn, Michael; Johnson, Rebecca; Thompson, Kate; Anazodo, Antoinette; Albritton, Karen; Ferrari, Andrea; Stark, Daniel.

In: Pediatric Blood and Cancer, Vol. 66, No. 12, e27991, 01.12.2019.

Research output: Contribution to journalReview article

Osborn, M, Johnson, R, Thompson, K, Anazodo, A, Albritton, K, Ferrari, A & Stark, D 2019, 'Models of care for adolescent and young adult cancer programs', Pediatric Blood and Cancer, vol. 66, no. 12, e27991. https://doi.org/10.1002/pbc.27991
Osborn M, Johnson R, Thompson K, Anazodo A, Albritton K, Ferrari A et al. Models of care for adolescent and young adult cancer programs. Pediatric Blood and Cancer. 2019 Dec 1;66(12). e27991. https://doi.org/10.1002/pbc.27991
Osborn, Michael ; Johnson, Rebecca ; Thompson, Kate ; Anazodo, Antoinette ; Albritton, Karen ; Ferrari, Andrea ; Stark, Daniel. / Models of care for adolescent and young adult cancer programs. In: Pediatric Blood and Cancer. 2019 ; Vol. 66, No. 12.
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