More information, more choice: An Italian database for oncology patients

Anna Bogliolo, W. Russell-Edu, G. Alloro, R. Ballarini, G. Bocchini, L. Cecere, A. Codonesu, G. Cognetti, M. Montella, R. Ricci, P. Seroppi, A. Trocino, R. Truffelli, F. Cognetti, I. Truccolo

Research output: Contribution to journalArticle

Abstract

Background: In recent years there has been a proliferation of cancer information available for patients in the Italian language. However, quantity without validation and organization is by no means synonymous with providing good information and a good service. Furthermore, the lack of coordination and cooperation between the various information-providing initiatives results in uncontrolled waste. Materials and methods: To impose order on the vast ocean of cancer information in Italian, and to provide patients with a reliable and comprehensive tool, the Azalea Project was developed whereby a database of information for patients was created. Paper-based and electronic information is validated and stored so that patients can search and retrieve it. Validation is by means of a grid drawn up by the project team with reference to international standards. Results: The nucleus of the database constructed by the Centro di Riferimento Oncologico (Oncology Referral Centre), Aviano, was extended using the wide experience of the Italian Cancer Institutes within the Italian Alliance Against Cancer. The website is at http://www.azaleaweb.it. Conclusions: Meetings and courses specially designed for the project enabled evaluation grids to be created and permitted a fruitful interchange of skills and experience from a variety of professional information providers united in the common aim of providing patients with a service that meets their needs and puts them in control at a difficult time in their lives.

Original languageEnglish
Pages (from-to)1962-1967
Number of pages6
JournalAnnals of Oncology
Volume16
Issue number12
DOIs
Publication statusPublished - Dec 2005

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Keywords

  • Databases
  • Internet
  • Neoplasms
  • Patient education
  • Popular works

ASJC Scopus subject areas

  • Oncology
  • Cancer Research

Cite this

Bogliolo, A., Russell-Edu, W., Alloro, G., Ballarini, R., Bocchini, G., Cecere, L., Codonesu, A., Cognetti, G., Montella, M., Ricci, R., Seroppi, P., Trocino, A., Truffelli, R., Cognetti, F., & Truccolo, I. (2005). More information, more choice: An Italian database for oncology patients. Annals of Oncology, 16(12), 1962-1967. https://doi.org/10.1093/annonc/mdi402