Motoneuron diseases: Impact on health professionals

Paola Cerutti, Valentina Solara, Silvia Rossi Ferrano

Research output: Contribution to journalArticlepeer-review

Abstract

The approach to patients affected by motor neuron disease (MND) and their caregivers requires specific training for the care-team. In fact, the progression of the disease, with the decline of physical- and sometimes cognitive - function, the increasing difficulties in speaking, breathing, and swallowing and the need of invasive choices, as the artificial nutrition and tracheostomy, constitute a challenge for the health professionals, often generating distress. For this reason, their cohesion and sharing abilities are fundamental. Psychologist assumes a strategic role in supporting and facilitating the analysis of clinical cases and of the team's intra/interpersonal dynamics. For this aim, he/she needs specific training and instruments. We here present a semi-structured interview - the Motor Neuron Disease-Psychological Interview (MoNeDi-PI) - which may guide in the psychological assessment of patients affected by MNDs and their caregivers. It can also be a handy reference tool for other members of the healthcare team providing necessary information about the patient and caregiver in order to optimize clinical decision making about which health interventions to apply.

Original languageEnglish
Pages (from-to)69-78
Number of pages10
JournalGiornale Italiano di Medicina del Lavoro ed Ergonomia
Volume38
Issue number2
Publication statusPublished - Apr 1 2016

Keywords

  • Caregivers
  • Motor neuron diseases
  • Patient
  • Psychological assessment

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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