Move for Change Part I: A European survey evaluating the impact of the EPDA Charter for People with Parkinson's disease

B. R. Bloem, F. Stocchi

Research output: Contribution to journalArticle

Abstract

Background and purpose: The 1997 European Parkinson's Disease Association's (EPDA) Charter for People with Parkinson's disease (PD) outlines their rights in terms of standards of care. It states that all patients have the right to: be referred to a doctor with a special interest in PD; receive an accurate diagnosis; have access to support services; receive continuous care; and take part in managing their illness. Move for Change is a three-part series of pan-European patient surveys based on this Charter. Methods: This first survey, consisting of 23 questions, focusing on the initial two points of the Charter, was administered online through the EPDA and affiliated patient associations' Web sites. Of 2149 forms received from 35 European countries, 2068 (96.2%) were analyzed, with the remainder excluded, mainly due to incomplete responses. Results: The majority of patients were diagnosed within 2years from the onset of first symptoms (82.7%; range,

Original languageEnglish
Pages (from-to)402-410
Number of pages9
JournalEuropean Journal of Neurology
Volume19
Issue number3
DOIs
Publication statusPublished - Mar 2012

Keywords

  • Charter
  • Diagnosis
  • EPDA
  • European survey
  • Guidelines
  • Parkinson's disease
  • Quality of care
  • Treatment

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology

Fingerprint Dive into the research topics of 'Move for Change Part I: A European survey evaluating the impact of the EPDA Charter for People with Parkinson's disease'. Together they form a unique fingerprint.

  • Cite this