Neonatal intensive care parent satisfaction: a multicenter study translating and validating the Italian EMPATHIC-N questionnaire

Italian Empathic-N Study Group

Research output: Contribution to journalArticle

Abstract

BACKGROUND: In Neonatal Intensive Care Units (NICUs), parent satisfaction and their experiences are fundamental to assess clinical practice and improve the quality of care delivered to infants and parents. Recently, a specific instrument, the EMpowerment of PArents in THe Intensive Care-Neonatology (EMPATHIC-N), has been developed in the Netherlands. This instrument investigated different domains of care in NICUs from a family-centered care perspective. In Italy, no rigorous instruments are available to evaluate parent satisfaction and experiences in NICU with family-centered care. The aim of this study was to translate and validate the EMPATHIC-N instrument into Italian language measuring parent satisfaction.

METHODS: A psychometric study was conducted in nine Italian NICUs. The hospitals were allocated across Italy: four in the North, four in Central region, one in the South. Parents whose infants were discharged from the Units were enrolled. Parents whose infants died were excluded.

RESULTS: Back-forward translation was conducted. Twelve parents reviewed the instrument to assess the cultural adaptation; none of the items fell below the cut-off of 80% agreement. A total of 186 parents of infants who were discharged from nine NICUs were invited to participate and 162 parents responded and returned the questionnaire (87%). The mean scores of the individual items varied between 4.3 and 5.9. Confirmatory factor analysis was performed and all factor loadings were statistically significant with the exception of item 'Our cultural background was taken into account'. The items related to overall satisfaction showed a higher trend with mean values of 5.8 and 5.9. The Cronbach's alpha's (at domain level 0.73-0.92) and corrected item-total scale correlations revealed high reliability estimates.

CONCLUSIONS: The Italian EMPATHIC-N showed to be a valid and reliable instrument measuring parent satisfaction in NICUs from a family-centered care perspective. Indeed, it had good psychometric properties, validity, and reliability. Furthermore, this instrument is fundamental for further research and internationally benchmarking.

Original languageEnglish
Pages (from-to)5
Number of pages8
JournalItalian Journal of Pediatrics
Volume44
Issue number1
DOIs
Publication statusPublished - Jan 5 2018

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Neonatology
Neonatal Intensive Care
Critical Care
Multicenter Studies
Parents
Neonatal Intensive Care Units
Psychometrics
Italy
Power (Psychology)
Surveys and Questionnaires
Benchmarking
Quality of Health Care
Reproducibility of Results
Netherlands
Statistical Factor Analysis
Language

Keywords

  • Adult
  • Factor Analysis, Statistical
  • Female
  • Humans
  • Infant, Newborn
  • Intensive Care Units, Neonatal/organization & administration
  • Intensive Care, Neonatal/organization & administration
  • Italy
  • Length of Stay
  • Male
  • Neonatology/methods
  • Outcome Assessment (Health Care)
  • Parents/psychology
  • Patient Satisfaction
  • Power (Psychology)
  • Psychometrics
  • Reproducibility of Results
  • Risk Assessment
  • Surveys and Questionnaires
  • Translations

Cite this

Neonatal intensive care parent satisfaction : a multicenter study translating and validating the Italian EMPATHIC-N questionnaire. / Italian Empathic-N Study Group.

In: Italian Journal of Pediatrics, Vol. 44, No. 1, 05.01.2018, p. 5.

Research output: Contribution to journalArticle

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abstract = "BACKGROUND: In Neonatal Intensive Care Units (NICUs), parent satisfaction and their experiences are fundamental to assess clinical practice and improve the quality of care delivered to infants and parents. Recently, a specific instrument, the EMpowerment of PArents in THe Intensive Care-Neonatology (EMPATHIC-N), has been developed in the Netherlands. This instrument investigated different domains of care in NICUs from a family-centered care perspective. In Italy, no rigorous instruments are available to evaluate parent satisfaction and experiences in NICU with family-centered care. The aim of this study was to translate and validate the EMPATHIC-N instrument into Italian language measuring parent satisfaction.METHODS: A psychometric study was conducted in nine Italian NICUs. The hospitals were allocated across Italy: four in the North, four in Central region, one in the South. Parents whose infants were discharged from the Units were enrolled. Parents whose infants died were excluded.RESULTS: Back-forward translation was conducted. Twelve parents reviewed the instrument to assess the cultural adaptation; none of the items fell below the cut-off of 80{\%} agreement. A total of 186 parents of infants who were discharged from nine NICUs were invited to participate and 162 parents responded and returned the questionnaire (87{\%}). The mean scores of the individual items varied between 4.3 and 5.9. Confirmatory factor analysis was performed and all factor loadings were statistically significant with the exception of item 'Our cultural background was taken into account'. The items related to overall satisfaction showed a higher trend with mean values of 5.8 and 5.9. The Cronbach's alpha's (at domain level 0.73-0.92) and corrected item-total scale correlations revealed high reliability estimates.CONCLUSIONS: The Italian EMPATHIC-N showed to be a valid and reliable instrument measuring parent satisfaction in NICUs from a family-centered care perspective. Indeed, it had good psychometric properties, validity, and reliability. Furthermore, this instrument is fundamental for further research and internationally benchmarking.",
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author = "{Italian Empathic-N Study Group} and Immacolata Dall'Oglio and Martina Fiori and Emanuela Tiozzo and Rachele Mascolo and Anna Portanova and Orsola Gawronski and Angela Ragni and Patrizia Amadio and Antonello Cocchieri and Roberta Fida and Rosaria Alvaro and Gennaro Rocco and Latour, {Jos M}",
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T1 - Neonatal intensive care parent satisfaction

T2 - a multicenter study translating and validating the Italian EMPATHIC-N questionnaire

AU - Italian Empathic-N Study Group

AU - Dall'Oglio, Immacolata

AU - Fiori, Martina

AU - Tiozzo, Emanuela

AU - Mascolo, Rachele

AU - Portanova, Anna

AU - Gawronski, Orsola

AU - Ragni, Angela

AU - Amadio, Patrizia

AU - Cocchieri, Antonello

AU - Fida, Roberta

AU - Alvaro, Rosaria

AU - Rocco, Gennaro

AU - Latour, Jos M

PY - 2018/1/5

Y1 - 2018/1/5

N2 - BACKGROUND: In Neonatal Intensive Care Units (NICUs), parent satisfaction and their experiences are fundamental to assess clinical practice and improve the quality of care delivered to infants and parents. Recently, a specific instrument, the EMpowerment of PArents in THe Intensive Care-Neonatology (EMPATHIC-N), has been developed in the Netherlands. This instrument investigated different domains of care in NICUs from a family-centered care perspective. In Italy, no rigorous instruments are available to evaluate parent satisfaction and experiences in NICU with family-centered care. The aim of this study was to translate and validate the EMPATHIC-N instrument into Italian language measuring parent satisfaction.METHODS: A psychometric study was conducted in nine Italian NICUs. The hospitals were allocated across Italy: four in the North, four in Central region, one in the South. Parents whose infants were discharged from the Units were enrolled. Parents whose infants died were excluded.RESULTS: Back-forward translation was conducted. Twelve parents reviewed the instrument to assess the cultural adaptation; none of the items fell below the cut-off of 80% agreement. A total of 186 parents of infants who were discharged from nine NICUs were invited to participate and 162 parents responded and returned the questionnaire (87%). The mean scores of the individual items varied between 4.3 and 5.9. Confirmatory factor analysis was performed and all factor loadings were statistically significant with the exception of item 'Our cultural background was taken into account'. The items related to overall satisfaction showed a higher trend with mean values of 5.8 and 5.9. The Cronbach's alpha's (at domain level 0.73-0.92) and corrected item-total scale correlations revealed high reliability estimates.CONCLUSIONS: The Italian EMPATHIC-N showed to be a valid and reliable instrument measuring parent satisfaction in NICUs from a family-centered care perspective. Indeed, it had good psychometric properties, validity, and reliability. Furthermore, this instrument is fundamental for further research and internationally benchmarking.

AB - BACKGROUND: In Neonatal Intensive Care Units (NICUs), parent satisfaction and their experiences are fundamental to assess clinical practice and improve the quality of care delivered to infants and parents. Recently, a specific instrument, the EMpowerment of PArents in THe Intensive Care-Neonatology (EMPATHIC-N), has been developed in the Netherlands. This instrument investigated different domains of care in NICUs from a family-centered care perspective. In Italy, no rigorous instruments are available to evaluate parent satisfaction and experiences in NICU with family-centered care. The aim of this study was to translate and validate the EMPATHIC-N instrument into Italian language measuring parent satisfaction.METHODS: A psychometric study was conducted in nine Italian NICUs. The hospitals were allocated across Italy: four in the North, four in Central region, one in the South. Parents whose infants were discharged from the Units were enrolled. Parents whose infants died were excluded.RESULTS: Back-forward translation was conducted. Twelve parents reviewed the instrument to assess the cultural adaptation; none of the items fell below the cut-off of 80% agreement. A total of 186 parents of infants who were discharged from nine NICUs were invited to participate and 162 parents responded and returned the questionnaire (87%). The mean scores of the individual items varied between 4.3 and 5.9. Confirmatory factor analysis was performed and all factor loadings were statistically significant with the exception of item 'Our cultural background was taken into account'. The items related to overall satisfaction showed a higher trend with mean values of 5.8 and 5.9. The Cronbach's alpha's (at domain level 0.73-0.92) and corrected item-total scale correlations revealed high reliability estimates.CONCLUSIONS: The Italian EMPATHIC-N showed to be a valid and reliable instrument measuring parent satisfaction in NICUs from a family-centered care perspective. Indeed, it had good psychometric properties, validity, and reliability. Furthermore, this instrument is fundamental for further research and internationally benchmarking.

KW - Adult

KW - Factor Analysis, Statistical

KW - Female

KW - Humans

KW - Infant, Newborn

KW - Intensive Care Units, Neonatal/organization & administration

KW - Intensive Care, Neonatal/organization & administration

KW - Italy

KW - Length of Stay

KW - Male

KW - Neonatology/methods

KW - Outcome Assessment (Health Care)

KW - Parents/psychology

KW - Patient Satisfaction

KW - Power (Psychology)

KW - Psychometrics

KW - Reproducibility of Results

KW - Risk Assessment

KW - Surveys and Questionnaires

KW - Translations

U2 - 10.1186/s13052-017-0439-8

DO - 10.1186/s13052-017-0439-8

M3 - Article

C2 - 29304879

VL - 44

SP - 5

JO - Italian Journal of Pediatrics

JF - Italian Journal of Pediatrics

SN - 1720-8424

IS - 1

ER -