Palliative care in heart failure: A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology

Tiny Jaarsma, James M. Beattie, Mary Ryder, Frans H. Rutten, Theresa McDonagh, Paul Mohacsi, Scott A. Murray, Thomas Grodzicki, Ingrid Bergh, Marco Metra, Inger Ekman, Christiane Angermann, Marcia Leventhal, Antonis Pitsis, Stefan D. Anker, Antonello Gavazzi, Piotr Ponikowski, Kenneth Dickstein, Etienne Delacretaz, Lynda BlueFlorian Strasser, John McMurray

Research output: Contribution to journalArticle

328 Citations (Scopus)

Abstract

Heart failure is a serious condition and equivalent to malignant disease in terms of symptom burden and mortality. At this moment only a comparatively small number of heart failure patients receive specialist palliative care. Heart failure patients may have generic palliative care needs, such as refractory multifaceted symptoms, communication and decision making issues and the requirement for family support. The Advanced Heart Failure Study Group of the Heart Failure Association of the European Society of Cardiology organized a workshop to address the issue of palliative care in heart failure to increase awareness of the need for palliative care. Additional objectives included improving the accessibility and quality of palliative care for heart failure patients and promoting the development of heart failure-orientated palliative care services across Europe. This document represents a synthesis of the presentations and discussion during the workshop and describes recommendations in the area of delivery of quality care to patients and families, education, treatment coordination, research and policy.

Original languageEnglish
Pages (from-to)433-443
Number of pages11
JournalEuropean Journal of Heart Failure
Volume11
Issue number5
DOIs
Publication statusPublished - May 2009

Fingerprint

Palliative Care
Heart Failure
Education
Quality of Health Care
Patient Education
Decision Making
Communication
Mortality
Research

Keywords

  • Heart failure
  • Palliative care

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

Cite this

Palliative care in heart failure : A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. / Jaarsma, Tiny; Beattie, James M.; Ryder, Mary; Rutten, Frans H.; McDonagh, Theresa; Mohacsi, Paul; Murray, Scott A.; Grodzicki, Thomas; Bergh, Ingrid; Metra, Marco; Ekman, Inger; Angermann, Christiane; Leventhal, Marcia; Pitsis, Antonis; Anker, Stefan D.; Gavazzi, Antonello; Ponikowski, Piotr; Dickstein, Kenneth; Delacretaz, Etienne; Blue, Lynda; Strasser, Florian; McMurray, John.

In: European Journal of Heart Failure, Vol. 11, No. 5, 05.2009, p. 433-443.

Research output: Contribution to journalArticle

Jaarsma, T, Beattie, JM, Ryder, M, Rutten, FH, McDonagh, T, Mohacsi, P, Murray, SA, Grodzicki, T, Bergh, I, Metra, M, Ekman, I, Angermann, C, Leventhal, M, Pitsis, A, Anker, SD, Gavazzi, A, Ponikowski, P, Dickstein, K, Delacretaz, E, Blue, L, Strasser, F & McMurray, J 2009, 'Palliative care in heart failure: A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology', European Journal of Heart Failure, vol. 11, no. 5, pp. 433-443. https://doi.org/10.1093/eurjhf/hfp041
Jaarsma, Tiny ; Beattie, James M. ; Ryder, Mary ; Rutten, Frans H. ; McDonagh, Theresa ; Mohacsi, Paul ; Murray, Scott A. ; Grodzicki, Thomas ; Bergh, Ingrid ; Metra, Marco ; Ekman, Inger ; Angermann, Christiane ; Leventhal, Marcia ; Pitsis, Antonis ; Anker, Stefan D. ; Gavazzi, Antonello ; Ponikowski, Piotr ; Dickstein, Kenneth ; Delacretaz, Etienne ; Blue, Lynda ; Strasser, Florian ; McMurray, John. / Palliative care in heart failure : A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. In: European Journal of Heart Failure. 2009 ; Vol. 11, No. 5. pp. 433-443.
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