PARADISE 24

A measure to assess the impact of brain disorders on people's lives

Alarcos Cieza, Carla Sabariego, Marta Anczewska, Carolina Ballert, Jerome Bickenbach, Maria Cabello, Ambra Giovannetti, Teemu Kaskela, Blanca Mellor, Tuuli Pitkänen, Rui Quintas, Alberto Raggi, Piotr ͆witaj, Somnath Chatterji, Michaela Coenen, Heinrich Gall, Barbara Kollerits, Jose Luis Ayuso-Mateos, Jordi Vigil, Matilde Leonardi & 19 others Milda Cerniauskaite, Venusia Covelli, Silvia Schiavolin, Mirjam Brach, Miriam Lückenkemper, Mary Baker, Alastair Benbow, Tadeusz Hawrot, Sally Hartley, Katarzyna Charzyńska, Anna Chrostek, Joanna Roszczyńska-Michta, Justyna Waszkiewicz, Carla Finocchiaro, Serena Cogoni, Antti Holopainen, Kirsi Jokela, Jonna Levola, Jouni Tourunen

Research output: Contribution to journalArticle

14 Citations (Scopus)

Abstract

Objective: To construct a metric of the impact of brain disorders on people's lives, based on the psychosocial difficulties (PSDs) that are experienced in common across brain disorders. Study Design: Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in four European countries: Italy, Poland, Spain and Finland. Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise. Rasch analyses for polytomous data were also applied. Setting: In and outpatient settings. Results: A valid and reliable metric with 24 items was created. The infit of all questions ranged between 0.7 and 1.3. There were no disordered thresholds. The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92. Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs). Conclusion: The metric, called PARADISE 24, is based on the hypothesis of horizontal epidemiology, which affirms that people with brain disorders commonly experience PSDs. This metric is a useful tool to carry out cardinal comparisons over time of the magnitude of the psychosocial impact of brain disorders and between persons and groups in clinical practice and research.

Original languageEnglish
Article numbere0132410
JournalPLoS One
Volume10
Issue number7
DOIs
Publication statusPublished - Jul 6 2015

Fingerprint

Brain Diseases
Brain
brain
Aptitude
Epidemiology
Poland
Finland
Psychometrics
Spain
Italy
Outpatients
Cross-Sectional Studies
cross-sectional studies
epidemiology
experimental design
Research

ASJC Scopus subject areas

  • Agricultural and Biological Sciences(all)
  • Biochemistry, Genetics and Molecular Biology(all)
  • Medicine(all)

Cite this

Cieza, A., Sabariego, C., Anczewska, M., Ballert, C., Bickenbach, J., Cabello, M., ... Tourunen, J. (2015). PARADISE 24: A measure to assess the impact of brain disorders on people's lives. PLoS One, 10(7), [e0132410]. https://doi.org/10.1371/journal.pone.0132410

PARADISE 24 : A measure to assess the impact of brain disorders on people's lives. / Cieza, Alarcos; Sabariego, Carla; Anczewska, Marta; Ballert, Carolina; Bickenbach, Jerome; Cabello, Maria; Giovannetti, Ambra; Kaskela, Teemu; Mellor, Blanca; Pitkänen, Tuuli; Quintas, Rui; Raggi, Alberto; ͆witaj, Piotr; Chatterji, Somnath; Coenen, Michaela; Gall, Heinrich; Kollerits, Barbara; Ayuso-Mateos, Jose Luis; Vigil, Jordi; Leonardi, Matilde; Cerniauskaite, Milda; Covelli, Venusia; Schiavolin, Silvia; Brach, Mirjam; Lückenkemper, Miriam; Baker, Mary; Benbow, Alastair; Hawrot, Tadeusz; Hartley, Sally; Charzyńska, Katarzyna; Chrostek, Anna; Roszczyńska-Michta, Joanna; Waszkiewicz, Justyna; Finocchiaro, Carla; Cogoni, Serena; Holopainen, Antti; Jokela, Kirsi; Levola, Jonna; Tourunen, Jouni.

In: PLoS One, Vol. 10, No. 7, e0132410, 06.07.2015.

Research output: Contribution to journalArticle

Cieza, A, Sabariego, C, Anczewska, M, Ballert, C, Bickenbach, J, Cabello, M, Giovannetti, A, Kaskela, T, Mellor, B, Pitkänen, T, Quintas, R, Raggi, A, ͆witaj, P, Chatterji, S, Coenen, M, Gall, H, Kollerits, B, Ayuso-Mateos, JL, Vigil, J, Leonardi, M, Cerniauskaite, M, Covelli, V, Schiavolin, S, Brach, M, Lückenkemper, M, Baker, M, Benbow, A, Hawrot, T, Hartley, S, Charzyńska, K, Chrostek, A, Roszczyńska-Michta, J, Waszkiewicz, J, Finocchiaro, C, Cogoni, S, Holopainen, A, Jokela, K, Levola, J & Tourunen, J 2015, 'PARADISE 24: A measure to assess the impact of brain disorders on people's lives', PLoS One, vol. 10, no. 7, e0132410. https://doi.org/10.1371/journal.pone.0132410
Cieza A, Sabariego C, Anczewska M, Ballert C, Bickenbach J, Cabello M et al. PARADISE 24: A measure to assess the impact of brain disorders on people's lives. PLoS One. 2015 Jul 6;10(7). e0132410. https://doi.org/10.1371/journal.pone.0132410
Cieza, Alarcos ; Sabariego, Carla ; Anczewska, Marta ; Ballert, Carolina ; Bickenbach, Jerome ; Cabello, Maria ; Giovannetti, Ambra ; Kaskela, Teemu ; Mellor, Blanca ; Pitkänen, Tuuli ; Quintas, Rui ; Raggi, Alberto ; ͆witaj, Piotr ; Chatterji, Somnath ; Coenen, Michaela ; Gall, Heinrich ; Kollerits, Barbara ; Ayuso-Mateos, Jose Luis ; Vigil, Jordi ; Leonardi, Matilde ; Cerniauskaite, Milda ; Covelli, Venusia ; Schiavolin, Silvia ; Brach, Mirjam ; Lückenkemper, Miriam ; Baker, Mary ; Benbow, Alastair ; Hawrot, Tadeusz ; Hartley, Sally ; Charzyńska, Katarzyna ; Chrostek, Anna ; Roszczyńska-Michta, Joanna ; Waszkiewicz, Justyna ; Finocchiaro, Carla ; Cogoni, Serena ; Holopainen, Antti ; Jokela, Kirsi ; Levola, Jonna ; Tourunen, Jouni. / PARADISE 24 : A measure to assess the impact of brain disorders on people's lives. In: PLoS One. 2015 ; Vol. 10, No. 7.
@article{21252500bff8442b81dd31a4357a205b,
title = "PARADISE 24: A measure to assess the impact of brain disorders on people's lives",
abstract = "Objective: To construct a metric of the impact of brain disorders on people's lives, based on the psychosocial difficulties (PSDs) that are experienced in common across brain disorders. Study Design: Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in four European countries: Italy, Poland, Spain and Finland. Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise. Rasch analyses for polytomous data were also applied. Setting: In and outpatient settings. Results: A valid and reliable metric with 24 items was created. The infit of all questions ranged between 0.7 and 1.3. There were no disordered thresholds. The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92. Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs). Conclusion: The metric, called PARADISE 24, is based on the hypothesis of horizontal epidemiology, which affirms that people with brain disorders commonly experience PSDs. This metric is a useful tool to carry out cardinal comparisons over time of the magnitude of the psychosocial impact of brain disorders and between persons and groups in clinical practice and research.",
author = "Alarcos Cieza and Carla Sabariego and Marta Anczewska and Carolina Ballert and Jerome Bickenbach and Maria Cabello and Ambra Giovannetti and Teemu Kaskela and Blanca Mellor and Tuuli Pitk{\"a}nen and Rui Quintas and Alberto Raggi and Piotr ͆witaj and Somnath Chatterji and Michaela Coenen and Heinrich Gall and Barbara Kollerits and Ayuso-Mateos, {Jose Luis} and Jordi Vigil and Matilde Leonardi and Milda Cerniauskaite and Venusia Covelli and Silvia Schiavolin and Mirjam Brach and Miriam L{\"u}ckenkemper and Mary Baker and Alastair Benbow and Tadeusz Hawrot and Sally Hartley and Katarzyna Charzyńska and Anna Chrostek and Joanna Roszczyńska-Michta and Justyna Waszkiewicz and Carla Finocchiaro and Serena Cogoni and Antti Holopainen and Kirsi Jokela and Jonna Levola and Jouni Tourunen",
year = "2015",
month = "7",
day = "6",
doi = "10.1371/journal.pone.0132410",
language = "English",
volume = "10",
journal = "PLoS One",
issn = "1932-6203",
publisher = "Public Library of Science",
number = "7",

}

TY - JOUR

T1 - PARADISE 24

T2 - A measure to assess the impact of brain disorders on people's lives

AU - Cieza, Alarcos

AU - Sabariego, Carla

AU - Anczewska, Marta

AU - Ballert, Carolina

AU - Bickenbach, Jerome

AU - Cabello, Maria

AU - Giovannetti, Ambra

AU - Kaskela, Teemu

AU - Mellor, Blanca

AU - Pitkänen, Tuuli

AU - Quintas, Rui

AU - Raggi, Alberto

AU - ͆witaj, Piotr

AU - Chatterji, Somnath

AU - Coenen, Michaela

AU - Gall, Heinrich

AU - Kollerits, Barbara

AU - Ayuso-Mateos, Jose Luis

AU - Vigil, Jordi

AU - Leonardi, Matilde

AU - Cerniauskaite, Milda

AU - Covelli, Venusia

AU - Schiavolin, Silvia

AU - Brach, Mirjam

AU - Lückenkemper, Miriam

AU - Baker, Mary

AU - Benbow, Alastair

AU - Hawrot, Tadeusz

AU - Hartley, Sally

AU - Charzyńska, Katarzyna

AU - Chrostek, Anna

AU - Roszczyńska-Michta, Joanna

AU - Waszkiewicz, Justyna

AU - Finocchiaro, Carla

AU - Cogoni, Serena

AU - Holopainen, Antti

AU - Jokela, Kirsi

AU - Levola, Jonna

AU - Tourunen, Jouni

PY - 2015/7/6

Y1 - 2015/7/6

N2 - Objective: To construct a metric of the impact of brain disorders on people's lives, based on the psychosocial difficulties (PSDs) that are experienced in common across brain disorders. Study Design: Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in four European countries: Italy, Poland, Spain and Finland. Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise. Rasch analyses for polytomous data were also applied. Setting: In and outpatient settings. Results: A valid and reliable metric with 24 items was created. The infit of all questions ranged between 0.7 and 1.3. There were no disordered thresholds. The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92. Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs). Conclusion: The metric, called PARADISE 24, is based on the hypothesis of horizontal epidemiology, which affirms that people with brain disorders commonly experience PSDs. This metric is a useful tool to carry out cardinal comparisons over time of the magnitude of the psychosocial impact of brain disorders and between persons and groups in clinical practice and research.

AB - Objective: To construct a metric of the impact of brain disorders on people's lives, based on the psychosocial difficulties (PSDs) that are experienced in common across brain disorders. Study Design: Psychometric study using data from a cross-sectional study with a convenience sample of 722 persons with 9 different brain disorders interviewed in four European countries: Italy, Poland, Spain and Finland. Questions addressing 64 PSDs were first reduced based on statistical considerations, patient's perspective and clinical expertise. Rasch analyses for polytomous data were also applied. Setting: In and outpatient settings. Results: A valid and reliable metric with 24 items was created. The infit of all questions ranged between 0.7 and 1.3. There were no disordered thresholds. The targeting between item thresholds and persons' abilities was good and the person-separation index was 0.92. Persons' abilities were linearly transformed into a more intuitive scale ranging from zero (no PSDs) to 100 (extreme PSDs). Conclusion: The metric, called PARADISE 24, is based on the hypothesis of horizontal epidemiology, which affirms that people with brain disorders commonly experience PSDs. This metric is a useful tool to carry out cardinal comparisons over time of the magnitude of the psychosocial impact of brain disorders and between persons and groups in clinical practice and research.

UR - http://www.scopus.com/inward/record.url?scp=84940200746&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84940200746&partnerID=8YFLogxK

U2 - 10.1371/journal.pone.0132410

DO - 10.1371/journal.pone.0132410

M3 - Article

VL - 10

JO - PLoS One

JF - PLoS One

SN - 1932-6203

IS - 7

M1 - e0132410

ER -