Parent and self-report health-related quality of life measures in young patients with tourette syndrome

Andrea E. Cavanna, Chiara Luoni, Claudia Selvini, Rosanna Blangiardo, Clare M. Eddy, Paola R. Silvestri, Paola V. Cali', Emanuela Gagliardi, Umberto Balottin, Francesco Cardona, Renata Rizzo, Cristiano Termine

Research output: Contribution to journalArticlepeer-review


Tourette syndrome is a neurodevelopmental disorder characterized by tics and comorbid behavioral problems. This study compared child- and parent-reported quality of life and everyday functioning. We assessed 75 children with Tourette syndrome, of which 42 (56%) had comorbid conditions (obsessive-compulsive disorder = 25; attention-deficit hyperactivity disorder = 6; both comorbidities = 4). All patients completed psychometric instruments, including the Gilles de la Tourette Syndrome-Quality of Life Scale for Children and Adolescents (child report) and the Child Tourette's Syndrome Impairment Scale (parent report). Data were compared for patients with pure Tourette syndrome, Tourette syndrome + obsessive-compulsive disorder, Tourette syndrome + attention-deficit hyperactivity disorder, and Tourette syndrome + both comorbidities. There were no group differences in quality of life. However, there were differences for total, school, and home activities impairment scores. Children and parents may not share similar views about the impact of Tourette syndrome on functioning. The measurement of health-related quality of life in Tourette syndrome is more complex in children than adults.

Original languageEnglish
Pages (from-to)1305-1308
Number of pages4
JournalJournal of Child Neurology
Issue number10
Publication statusPublished - Oct 2013


  • health-related quality of life
  • parent report
  • self-report
  • tics
  • Tourette syndrome

ASJC Scopus subject areas

  • Clinical Neurology
  • Pediatrics, Perinatology, and Child Health


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