Parental evaluation of a telemonitoring service for children with Type 1 Diabetes

E Losiouk, G Lanzola, S Del Favero, F Boscari, M Messori, I Rabbone, R Bonfanti, A Sabbion, D Iafusco, R Schiaffini, R Visentin, S Galasso, F Di Palma, D Chernavvsky, L Magni, C Cobelli, D Bruttomesso, S Quaglini

Research output: Contribution to journalArticle

Abstract

Introduction In the past years, we developed a telemonitoring service for young patients affected by Type 1 Diabetes. The service provides data to the clinical staff and offers an important tool to the parents, that are able to oversee in real time their children. The aim of this work was to analyze the parents' perceived usefulness of the service. Methods The service was tested by the parents of 31 children enrolled in a seven-day clinical trial during a summer camp. To study the parents' perception we proposed and analyzed two questionnaires. A baseline questionnaire focused on the daily management and implications of their children's diabetes, while a post-study one measured the perceived benefits of telemonitoring. Questionnaires also included free text comment spaces. Results Analysis of the baseline questionnaires underlined the parents' suffering and fatigue: 51% of total responses showed a negative tendency and the mean value of the perceived quality of life was 64.13 in a 0-100 scale. In the post-study questionnaires about half of the parents believed in a possible improvement adopting telemonitoring. Moreover, the foreseen improvement in quality of life was significant, increasing from 64.13 to 78.39 ( p-value = 0.0001). The analysis of free text comments highlighted an improvement in mood, and parents' commitment was also proved by their willingness to pay for the service (median = 200 euro/year). Discussion A high number of parents appreciated the telemonitoring service and were confident that it could improve communication with physicians as well as the family's own peace of mind.

Original languageEnglish
Pages (from-to)230-237
Number of pages8
JournalJournal of Telemedicine and Telecare
Volume24
Issue number3
DOIs
Publication statusPublished - Apr 2018

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Type 1 Diabetes Mellitus
Parents
Quality of Life
Psychological Stress
Fatigue
Communication
Surveys and Questionnaires
Clinical Trials
Physicians

Keywords

  • Attitude to Health
  • Caregivers/psychology
  • Child
  • Child, Preschool
  • Diabetes Mellitus, Type 1/therapy
  • Disease Management
  • Female
  • Humans
  • Male
  • Parents/psychology
  • Quality of Life/psychology
  • Surveys and Questionnaires
  • Telemedicine/methods

Cite this

Losiouk, E., Lanzola, G., Del Favero, S., Boscari, F., Messori, M., Rabbone, I., ... Quaglini, S. (2018). Parental evaluation of a telemonitoring service for children with Type 1 Diabetes. Journal of Telemedicine and Telecare, 24(3), 230-237. https://doi.org/10.1177/1357633X17695172

Parental evaluation of a telemonitoring service for children with Type 1 Diabetes. / Losiouk, E; Lanzola, G; Del Favero, S; Boscari, F; Messori, M; Rabbone, I; Bonfanti, R; Sabbion, A; Iafusco, D; Schiaffini, R; Visentin, R; Galasso, S; Di Palma, F; Chernavvsky, D; Magni, L; Cobelli, C; Bruttomesso, D; Quaglini, S.

In: Journal of Telemedicine and Telecare, Vol. 24, No. 3, 04.2018, p. 230-237.

Research output: Contribution to journalArticle

Losiouk, E, Lanzola, G, Del Favero, S, Boscari, F, Messori, M, Rabbone, I, Bonfanti, R, Sabbion, A, Iafusco, D, Schiaffini, R, Visentin, R, Galasso, S, Di Palma, F, Chernavvsky, D, Magni, L, Cobelli, C, Bruttomesso, D & Quaglini, S 2018, 'Parental evaluation of a telemonitoring service for children with Type 1 Diabetes', Journal of Telemedicine and Telecare, vol. 24, no. 3, pp. 230-237. https://doi.org/10.1177/1357633X17695172
Losiouk, E ; Lanzola, G ; Del Favero, S ; Boscari, F ; Messori, M ; Rabbone, I ; Bonfanti, R ; Sabbion, A ; Iafusco, D ; Schiaffini, R ; Visentin, R ; Galasso, S ; Di Palma, F ; Chernavvsky, D ; Magni, L ; Cobelli, C ; Bruttomesso, D ; Quaglini, S. / Parental evaluation of a telemonitoring service for children with Type 1 Diabetes. In: Journal of Telemedicine and Telecare. 2018 ; Vol. 24, No. 3. pp. 230-237.
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abstract = "Introduction In the past years, we developed a telemonitoring service for young patients affected by Type 1 Diabetes. The service provides data to the clinical staff and offers an important tool to the parents, that are able to oversee in real time their children. The aim of this work was to analyze the parents' perceived usefulness of the service. Methods The service was tested by the parents of 31 children enrolled in a seven-day clinical trial during a summer camp. To study the parents' perception we proposed and analyzed two questionnaires. A baseline questionnaire focused on the daily management and implications of their children's diabetes, while a post-study one measured the perceived benefits of telemonitoring. Questionnaires also included free text comment spaces. Results Analysis of the baseline questionnaires underlined the parents' suffering and fatigue: 51{\%} of total responses showed a negative tendency and the mean value of the perceived quality of life was 64.13 in a 0-100 scale. In the post-study questionnaires about half of the parents believed in a possible improvement adopting telemonitoring. Moreover, the foreseen improvement in quality of life was significant, increasing from 64.13 to 78.39 ( p-value = 0.0001). The analysis of free text comments highlighted an improvement in mood, and parents' commitment was also proved by their willingness to pay for the service (median = 200 euro/year). Discussion A high number of parents appreciated the telemonitoring service and were confident that it could improve communication with physicians as well as the family's own peace of mind.",
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T1 - Parental evaluation of a telemonitoring service for children with Type 1 Diabetes

AU - Losiouk, E

AU - Lanzola, G

AU - Del Favero, S

AU - Boscari, F

AU - Messori, M

AU - Rabbone, I

AU - Bonfanti, R

AU - Sabbion, A

AU - Iafusco, D

AU - Schiaffini, R

AU - Visentin, R

AU - Galasso, S

AU - Di Palma, F

AU - Chernavvsky, D

AU - Magni, L

AU - Cobelli, C

AU - Bruttomesso, D

AU - Quaglini, S

PY - 2018/4

Y1 - 2018/4

N2 - Introduction In the past years, we developed a telemonitoring service for young patients affected by Type 1 Diabetes. The service provides data to the clinical staff and offers an important tool to the parents, that are able to oversee in real time their children. The aim of this work was to analyze the parents' perceived usefulness of the service. Methods The service was tested by the parents of 31 children enrolled in a seven-day clinical trial during a summer camp. To study the parents' perception we proposed and analyzed two questionnaires. A baseline questionnaire focused on the daily management and implications of their children's diabetes, while a post-study one measured the perceived benefits of telemonitoring. Questionnaires also included free text comment spaces. Results Analysis of the baseline questionnaires underlined the parents' suffering and fatigue: 51% of total responses showed a negative tendency and the mean value of the perceived quality of life was 64.13 in a 0-100 scale. In the post-study questionnaires about half of the parents believed in a possible improvement adopting telemonitoring. Moreover, the foreseen improvement in quality of life was significant, increasing from 64.13 to 78.39 ( p-value = 0.0001). The analysis of free text comments highlighted an improvement in mood, and parents' commitment was also proved by their willingness to pay for the service (median = 200 euro/year). Discussion A high number of parents appreciated the telemonitoring service and were confident that it could improve communication with physicians as well as the family's own peace of mind.

AB - Introduction In the past years, we developed a telemonitoring service for young patients affected by Type 1 Diabetes. The service provides data to the clinical staff and offers an important tool to the parents, that are able to oversee in real time their children. The aim of this work was to analyze the parents' perceived usefulness of the service. Methods The service was tested by the parents of 31 children enrolled in a seven-day clinical trial during a summer camp. To study the parents' perception we proposed and analyzed two questionnaires. A baseline questionnaire focused on the daily management and implications of their children's diabetes, while a post-study one measured the perceived benefits of telemonitoring. Questionnaires also included free text comment spaces. Results Analysis of the baseline questionnaires underlined the parents' suffering and fatigue: 51% of total responses showed a negative tendency and the mean value of the perceived quality of life was 64.13 in a 0-100 scale. In the post-study questionnaires about half of the parents believed in a possible improvement adopting telemonitoring. Moreover, the foreseen improvement in quality of life was significant, increasing from 64.13 to 78.39 ( p-value = 0.0001). The analysis of free text comments highlighted an improvement in mood, and parents' commitment was also proved by their willingness to pay for the service (median = 200 euro/year). Discussion A high number of parents appreciated the telemonitoring service and were confident that it could improve communication with physicians as well as the family's own peace of mind.

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KW - Caregivers/psychology

KW - Child

KW - Child, Preschool

KW - Diabetes Mellitus, Type 1/therapy

KW - Disease Management

KW - Female

KW - Humans

KW - Male

KW - Parents/psychology

KW - Quality of Life/psychology

KW - Surveys and Questionnaires

KW - Telemedicine/methods

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DO - 10.1177/1357633X17695172

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C2 - 28345384

VL - 24

SP - 230

EP - 237

JO - Journal of Telemedicine and Telecare

JF - Journal of Telemedicine and Telecare

SN - 1357-633X

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ER -