Participation in medical decision-making: Attitudes of Italians with multiple sclerosis

Andrea Giordano, Katia Mattarozzi, Eugenio Pucci, Maurizio Leone, Federica Casini, Laura Collimedaglia, Alessandra Solari

Research output: Contribution to journalArticle

Abstract

Background: Patient involvement in decisions regarding their care has been advocated, but preferences have not been adequately canvassed, particularly in people with multiple sclerosis (MS). Objectives: To cross-culturally adapt and validate the Italian version of the Control Preference Scale (CPS) subsequently used to assess preferences of people with MS. Methods: Translation-adaptation into Italian of CPS from the original Canadian English followed by administration in 140 people with MS from five Italian centers (with re-administration in 35) and semi-structured interview. Results: Cross-cultural adaptation of CPS was successful. The 140 people with MS, who varied in clinical and general characteristics, considered the CPS clear and acceptable. Test-retest reliability was moderate (weighted Kappa 0.65; p <0.001). A collaborative role was preferred (61%), followed by passive (33%) and active (6%) roles. Education (odds ratio [OR] 2.43, 95% confidence limits [CI] 1.05-5.66) and length of follow-up at referral center (OR 0.36, 95% CI 0.14-0.92) were associated with choice of an active/collaborative role in the logistic model. Conclusions: The Italian CPS was well accepted by our MS population. Our data indicate that a high proportion of Italians with MS prefer a more passive role and this should be considered during the clinical encounter.

Original languageEnglish
Pages (from-to)86-91
Number of pages6
JournalJournal of the Neurological Sciences
Volume275
Issue number1-2
DOIs
Publication statusPublished - Dec 15 2008

Keywords

  • Decision-making
  • Multiple sclerosis
  • Patient participation
  • Patient-physician communication
  • Translation-adaptation

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology

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