Patient empowerment for cancer patients through a novel ICT infrastructure

Haridimos Kondylakis, Anca Bucur, Chiara Crico, Feng Dong, Norbert Graf, Stefan Hoffman, Lefteris Koumakis, Alice Manenti, Kostas Marias, Ketti Mazzocco, Gabriella Pravettoni, Chiara Renzi, Fatima Schera, Stefano Triberti, Manolis Tsiknakis, Stephan Kiefer

Research output: Contribution to journalArticle

Abstract

As a result of recent advances in cancer research and “precision medicine” approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults′ pilot.

Original languageEnglish
Article number103342
JournalJournal of Biomedical Informatics
Volume101
DOIs
Publication statusPublished - Jan 2020

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Keywords

  • Cancer
  • Patient empowerment
  • Personal health system
  • Psychoemotional monitoring

ASJC Scopus subject areas

  • Computer Science Applications
  • Health Informatics

Cite this

Kondylakis, H., Bucur, A., Crico, C., Dong, F., Graf, N., Hoffman, S., Koumakis, L., Manenti, A., Marias, K., Mazzocco, K., Pravettoni, G., Renzi, C., Schera, F., Triberti, S., Tsiknakis, M., & Kiefer, S. (2020). Patient empowerment for cancer patients through a novel ICT infrastructure. Journal of Biomedical Informatics, 101, [103342]. https://doi.org/10.1016/j.jbi.2019.103342