Patient-reported impact of spondyloarthritis on work disability and working life

The ATLANTIS survey

Roberta Ramonda, Antonio Marchesoni, Antonio Carletto, Gerolamo Bianchi, Maurizio Cutolo, Gianfranco Ferraccioli, Enrico Fusaro, Salvatore De Vita, Mauro Galeazzi, Roberto Gerli, Marco Matucci-Cerinic, Giovanni Minisola, Carlomaurizio Montecucco, Raffaele Pellerito, Fausto Salaffi, Giuseppe Paolazzi, Piercarlo Sarzi-Puttini, Raffaele Scarpa, Gianfilippo Bagnato, Giovanni Triolo & 23 others Guido Valesini, Leonardo Punzi, Ignazio Olivieri, Augusta Ortolan, Mariagrazia Lorenzin, Paola Frallonardo, Alessandro Giollo, Antonella Locaputo, Sabrina Paolino, Davide Simone, Luca Quartuccio, Elena Bartoloni, Rossella De Luca, Francesca Bartoli, Felice Sensi, Roberto Caporali, Marco Di Carlo, Bortolotti Roberto, Fabiola Atzeni, Luisa Costa, Francesco Ciccia, Fabio Perrotta, Michele Gilio

Research output: Contribution to journalArticle

18 Citations (Scopus)

Abstract

Background: The aim was to establish how patients experience the impact of spondyloarthritis (SpA) on work disability and working life. Methods: The survey was performed in 17/20 regions in Italy (1 January to 31 March 2013). A multiple-choice questionnaire was published on the official website of the sponsor - the National Association of Rheumatic Patients (ANMAR) - and hard-copies were distributed at outpatient clinics for rheumatic patients. Results: Respondents (n = 770) were of both sexes (56 % men), educated (62 % at high school or more), of working age (75 % aged ≤60 years), and affected by SpA. The most common types diagnosed were ankylosing spondylitis (AS) (39 %) and psoriatic arthritis (PsA) (36 %). Respondents were working full-time (45 %), part-time (8 %) or had retired (22 %); 15 % were unemployed (for reasons linked to the disease or for other reasons, students or housewives). Patients reported disability (39 %), were receiving disability benefits (34 %), were experiencing important limitations that were hindering their professional development/career (36 %) and some had to change/leave their job or lost it because of SpA (21 %). Employed respondents (n = 383) had worked on average 32.2 h in the last 7 days. More hours of work were lost over the last 7 days due to SpA (2.39 h vs 1.67 h). The indirect costs of the disease amounted to €106/week for patients reporting well-being/good physical conditions/improvement and €216/week for those reporting permanent impairment. Conclusions: Most patients were in the midst of their productive years and were experiencing considerable difficulties in carrying out their job because of the disease: half of them reported disability and one third were experiencing important limitations in their career perspective.

Original languageEnglish
Article number78
JournalArthritis Research and Therapy
Volume18
Issue number1
DOIs
Publication statusPublished - Apr 1 2016

Fingerprint

Psoriatic Arthritis
Cost of Illness
Ankylosing Spondylitis
Ambulatory Care Facilities
Italy
Surveys and Questionnaires
Students

Keywords

  • Absenteeism
  • Presenteeism
  • Spondyloarthritis
  • Survey
  • WPI

ASJC Scopus subject areas

  • Rheumatology
  • Immunology
  • Immunology and Allergy

Cite this

Ramonda, R., Marchesoni, A., Carletto, A., Bianchi, G., Cutolo, M., Ferraccioli, G., ... Gilio, M. (2016). Patient-reported impact of spondyloarthritis on work disability and working life: The ATLANTIS survey. Arthritis Research and Therapy, 18(1), [78]. https://doi.org/10.1186/s13075-016-0977-2

Patient-reported impact of spondyloarthritis on work disability and working life : The ATLANTIS survey. / Ramonda, Roberta; Marchesoni, Antonio; Carletto, Antonio; Bianchi, Gerolamo; Cutolo, Maurizio; Ferraccioli, Gianfranco; Fusaro, Enrico; De Vita, Salvatore; Galeazzi, Mauro; Gerli, Roberto; Matucci-Cerinic, Marco; Minisola, Giovanni; Montecucco, Carlomaurizio; Pellerito, Raffaele; Salaffi, Fausto; Paolazzi, Giuseppe; Sarzi-Puttini, Piercarlo; Scarpa, Raffaele; Bagnato, Gianfilippo; Triolo, Giovanni; Valesini, Guido; Punzi, Leonardo; Olivieri, Ignazio; Ortolan, Augusta; Lorenzin, Mariagrazia; Frallonardo, Paola; Giollo, Alessandro; Locaputo, Antonella; Paolino, Sabrina; Simone, Davide; Quartuccio, Luca; Bartoloni, Elena; Luca, Rossella De; Bartoli, Francesca; Sensi, Felice; Caporali, Roberto; Carlo, Marco Di; Roberto, Bortolotti; Atzeni, Fabiola; Costa, Luisa; Ciccia, Francesco; Perrotta, Fabio; Gilio, Michele.

In: Arthritis Research and Therapy, Vol. 18, No. 1, 78, 01.04.2016.

Research output: Contribution to journalArticle

Ramonda, R, Marchesoni, A, Carletto, A, Bianchi, G, Cutolo, M, Ferraccioli, G, Fusaro, E, De Vita, S, Galeazzi, M, Gerli, R, Matucci-Cerinic, M, Minisola, G, Montecucco, C, Pellerito, R, Salaffi, F, Paolazzi, G, Sarzi-Puttini, P, Scarpa, R, Bagnato, G, Triolo, G, Valesini, G, Punzi, L, Olivieri, I, Ortolan, A, Lorenzin, M, Frallonardo, P, Giollo, A, Locaputo, A, Paolino, S, Simone, D, Quartuccio, L, Bartoloni, E, Luca, RD, Bartoli, F, Sensi, F, Caporali, R, Carlo, MD, Roberto, B, Atzeni, F, Costa, L, Ciccia, F, Perrotta, F & Gilio, M 2016, 'Patient-reported impact of spondyloarthritis on work disability and working life: The ATLANTIS survey', Arthritis Research and Therapy, vol. 18, no. 1, 78. https://doi.org/10.1186/s13075-016-0977-2
Ramonda, Roberta ; Marchesoni, Antonio ; Carletto, Antonio ; Bianchi, Gerolamo ; Cutolo, Maurizio ; Ferraccioli, Gianfranco ; Fusaro, Enrico ; De Vita, Salvatore ; Galeazzi, Mauro ; Gerli, Roberto ; Matucci-Cerinic, Marco ; Minisola, Giovanni ; Montecucco, Carlomaurizio ; Pellerito, Raffaele ; Salaffi, Fausto ; Paolazzi, Giuseppe ; Sarzi-Puttini, Piercarlo ; Scarpa, Raffaele ; Bagnato, Gianfilippo ; Triolo, Giovanni ; Valesini, Guido ; Punzi, Leonardo ; Olivieri, Ignazio ; Ortolan, Augusta ; Lorenzin, Mariagrazia ; Frallonardo, Paola ; Giollo, Alessandro ; Locaputo, Antonella ; Paolino, Sabrina ; Simone, Davide ; Quartuccio, Luca ; Bartoloni, Elena ; Luca, Rossella De ; Bartoli, Francesca ; Sensi, Felice ; Caporali, Roberto ; Carlo, Marco Di ; Roberto, Bortolotti ; Atzeni, Fabiola ; Costa, Luisa ; Ciccia, Francesco ; Perrotta, Fabio ; Gilio, Michele. / Patient-reported impact of spondyloarthritis on work disability and working life : The ATLANTIS survey. In: Arthritis Research and Therapy. 2016 ; Vol. 18, No. 1.
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T2 - The ATLANTIS survey

AU - Ramonda, Roberta

AU - Marchesoni, Antonio

AU - Carletto, Antonio

AU - Bianchi, Gerolamo

AU - Cutolo, Maurizio

AU - Ferraccioli, Gianfranco

AU - Fusaro, Enrico

AU - De Vita, Salvatore

AU - Galeazzi, Mauro

AU - Gerli, Roberto

AU - Matucci-Cerinic, Marco

AU - Minisola, Giovanni

AU - Montecucco, Carlomaurizio

AU - Pellerito, Raffaele

AU - Salaffi, Fausto

AU - Paolazzi, Giuseppe

AU - Sarzi-Puttini, Piercarlo

AU - Scarpa, Raffaele

AU - Bagnato, Gianfilippo

AU - Triolo, Giovanni

AU - Valesini, Guido

AU - Punzi, Leonardo

AU - Olivieri, Ignazio

AU - Ortolan, Augusta

AU - Lorenzin, Mariagrazia

AU - Frallonardo, Paola

AU - Giollo, Alessandro

AU - Locaputo, Antonella

AU - Paolino, Sabrina

AU - Simone, Davide

AU - Quartuccio, Luca

AU - Bartoloni, Elena

AU - Luca, Rossella De

AU - Bartoli, Francesca

AU - Sensi, Felice

AU - Caporali, Roberto

AU - Carlo, Marco Di

AU - Roberto, Bortolotti

AU - Atzeni, Fabiola

AU - Costa, Luisa

AU - Ciccia, Francesco

AU - Perrotta, Fabio

AU - Gilio, Michele

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AB - Background: The aim was to establish how patients experience the impact of spondyloarthritis (SpA) on work disability and working life. Methods: The survey was performed in 17/20 regions in Italy (1 January to 31 March 2013). A multiple-choice questionnaire was published on the official website of the sponsor - the National Association of Rheumatic Patients (ANMAR) - and hard-copies were distributed at outpatient clinics for rheumatic patients. Results: Respondents (n = 770) were of both sexes (56 % men), educated (62 % at high school or more), of working age (75 % aged ≤60 years), and affected by SpA. The most common types diagnosed were ankylosing spondylitis (AS) (39 %) and psoriatic arthritis (PsA) (36 %). Respondents were working full-time (45 %), part-time (8 %) or had retired (22 %); 15 % were unemployed (for reasons linked to the disease or for other reasons, students or housewives). Patients reported disability (39 %), were receiving disability benefits (34 %), were experiencing important limitations that were hindering their professional development/career (36 %) and some had to change/leave their job or lost it because of SpA (21 %). Employed respondents (n = 383) had worked on average 32.2 h in the last 7 days. More hours of work were lost over the last 7 days due to SpA (2.39 h vs 1.67 h). The indirect costs of the disease amounted to €106/week for patients reporting well-being/good physical conditions/improvement and €216/week for those reporting permanent impairment. Conclusions: Most patients were in the midst of their productive years and were experiencing considerable difficulties in carrying out their job because of the disease: half of them reported disability and one third were experiencing important limitations in their career perspective.

KW - Absenteeism

KW - Presenteeism

KW - Spondyloarthritis

KW - Survey

KW - WPI

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