Patients with disorders of consciousness in India: Preliminary results from a pilot survey

Davide Sattin, Nirmal Surya, Caterina Pistarini, Paolo Tonin, Hitav Someshwar, Milena Caputo, Matilde Leonardi

Research output: Contribution to journalArticlepeer-review

Abstract

The epidemiological data of Indian patients with disorders of consciousness (DOC), specifically vegetative state and minimally conscious state, have not been investigated. The present study sought to explore the current state of the art in India for patients with DOC promoting a pilot survey. An ad hoc questionnaire was sent to a total of 400 Indian professionals who are affiliated to various centers; 59 professionals completed the questionnaire and 52 of them declared that their centers hospitalized patients with DOC in the last year for rehabilitation/medical treatments. The majority of the professionals were from Maharashtra region. The main preliminary findings showed that the prevalence rates of traumatic and nontraumatic etiologies were equally distributed, that the rate of use of the coma recovery scale-revised was low, and that the rehospitalization was always or frequently possible in neurological and rehabilitation units. The extrapolated estimated rate of patients with DOC hospitalized in the centers involved in 2017 was equal to 4 per million of population in Maharashtra region. More than 50% of the professionals declared that there were neither sufficient nor adequate services for caregivers' support. Even if the present pilot survey has some limitations, the present article offers the first preliminary data on patients with DOC in Indian country.

Original languageEnglish
Pages (from-to)485-487
Number of pages3
JournalAnnals of Indian Academy of Neurology
Volume22
Issue number4
DOIs
Publication statusPublished - Oct 1 2019

Keywords

  • Disorders of consciousness
  • epidemiology
  • India
  • survey
  • vegetative state

ASJC Scopus subject areas

  • Clinical Neurology

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