Patients with juvenile idiopathic arthritis become adults: the role of transitional care

Fabrizio Conti, Irene Pontikaki, Mariella D'Andrea, Angelo Ravelli, Fabrizio De Benedetti

Research output: Contribution to journalReview article

Abstract

Most juvenile idiopathic arthritis (JIA) patients need to attend adult rheumatology centres to continue the clinical management of their disease and to receive adequate long-term treatment. Transition from the paediatric to the adult health care team is a critical moment in the clinical history of these patients, but unfortunately, about 50% of the transfer processes to adult rheumatology are not successful, putting these patients at high risk of unfavourable outcomes. There are several obstacles to the success of transitional care for JIA patients, such as the absence of specific criteria for the assessment of disease activity, the lack of specific treatment recommendations for JIA adult patients, the poor adolescent-specific training for adult rheumatologists, and the shortage of resources. The improvement in the transition process in medical care has become a priority in many health care systems, but not many studies evaluating transition models, and common methodologies for measuring transition outcomes are available. The aim of this review is to identify and describe the models of transitional care in JIA, providing insights and recommendations to develop effective transitional care models in this disease.

Original languageEnglish
Number of pages9
JournalClinical and Experimental Rheumatology
Publication statusE-pub ahead of print - Apr 13 2018

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Juvenile Arthritis
Rheumatology
Patient Care Team
Disease Management
History
Transitional Care
Pediatrics
Delivery of Health Care
Therapeutics

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Patients with juvenile idiopathic arthritis become adults : the role of transitional care. / Conti, Fabrizio; Pontikaki, Irene; D'Andrea, Mariella; Ravelli, Angelo; De Benedetti, Fabrizio.

In: Clinical and Experimental Rheumatology, 13.04.2018.

Research output: Contribution to journalReview article

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