Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis

Contributing Members of the NEALS Bulbar Subcommittee

Research output: Contribution to journalArticle

Abstract

Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics. Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain. Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531–531, 2019.

Original languageEnglish
Pages (from-to)531-536
Number of pages6
JournalMuscle and Nerve
Volume59
Issue number5
DOIs
Publication statusPublished - May 2019

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Keywords

  • AAC
  • Bulbar
  • Guidelines
  • Speech
  • Swallowing

ASJC Scopus subject areas

  • Physiology
  • Clinical Neurology
  • Cellular and Molecular Neuroscience
  • Physiology (medical)

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