Quality assurance in melanoma care

The EU-MELACARE study

Antonio Sommariva, Ana-Maria Forsea, Domenic Agius, Paolo Antonio Ascierto, Esther Bastiaannet, Lorenzo Borgognoni, Anna Demetriou, Claus Garbe, Zivana Gavric, Marko Hocevar, Kaire Innos, Siri Larønningen, Marieke Louwman, Trude Eid Robsahm, Piotr Rutkwoski, Alexander van Akkooi, Manuel Zorzi, Sandro Pasquali, Cornelis van de Velde, Carlo Riccardo Rossi

Research output: Contribution to journalArticle

Abstract

BACKGROUND: A significant disparity regarding survival outcome for melanoma among European regions is well recognized and access to high quality care for European melanoma patients needs to be improved. There is an unmet need for the implementation of minimal standard of care within defined clinical pathways and Quality Assurance (QA) indicators.

OBJECTIVE: The EU-MELACARE study aims to identify shared variables for cutaneous melanoma cases recorded in melanoma registries across Europe.

MATERIAL AND METHODS: Opinion leaders involved in melanoma data registration and care quality analysis in 34 European countries were invited to respond to an expert survey covering questions regarding the melanoma registration practice in their countries and the characteristics, coverage and variables collected by the relevant melanoma registries.

RESULTS: Data regarding 13 melanoma registries from 11 European countries contributed to the study. The majority (61,5%) were population based registries and more than half (62%) had national coverage. The included registries collected a median of 38 variables (Interquartile Range, IRQ 21-76). We identified 24 shared variables available in >70% of registries.

CONCLUSIONS: This study provides valuable specific information on information recorded for melanoma cases are registered within Europe. A core of shared variables has been identified, which will constitute the basis for a standardized set of QA indicators for assessing and monitoring melanoma care across European countries.

Original languageEnglish
Pages (from-to)1773-1778
Number of pages6
JournalEuropean Journal of Surgical Oncology
Volume44
Issue number11
DOIs
Publication statusPublished - Nov 2018

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Melanoma
Registries
Critical Pathways
Quality of Health Care
Standard of Care
Skin
Survival
Population

Keywords

  • Europe/epidemiology
  • Health Services Accessibility
  • Humans
  • Melanoma/epidemiology
  • Quality Assurance, Health Care
  • Registries
  • Skin Neoplasms/epidemiology
  • Surveys and Questionnaires

Cite this

Quality assurance in melanoma care : The EU-MELACARE study. / Sommariva, Antonio; Forsea, Ana-Maria; Agius, Domenic; Ascierto, Paolo Antonio; Bastiaannet, Esther; Borgognoni, Lorenzo; Demetriou, Anna; Garbe, Claus; Gavric, Zivana; Hocevar, Marko; Innos, Kaire; Larønningen, Siri; Louwman, Marieke; Robsahm, Trude Eid; Rutkwoski, Piotr; van Akkooi, Alexander; Zorzi, Manuel; Pasquali, Sandro; van de Velde, Cornelis; Rossi, Carlo Riccardo.

In: European Journal of Surgical Oncology, Vol. 44, No. 11, 11.2018, p. 1773-1778.

Research output: Contribution to journalArticle

Sommariva, A, Forsea, A-M, Agius, D, Ascierto, PA, Bastiaannet, E, Borgognoni, L, Demetriou, A, Garbe, C, Gavric, Z, Hocevar, M, Innos, K, Larønningen, S, Louwman, M, Robsahm, TE, Rutkwoski, P, van Akkooi, A, Zorzi, M, Pasquali, S, van de Velde, C & Rossi, CR 2018, 'Quality assurance in melanoma care: The EU-MELACARE study', European Journal of Surgical Oncology, vol. 44, no. 11, pp. 1773-1778. https://doi.org/10.1016/j.ejso.2018.06.020
Sommariva, Antonio ; Forsea, Ana-Maria ; Agius, Domenic ; Ascierto, Paolo Antonio ; Bastiaannet, Esther ; Borgognoni, Lorenzo ; Demetriou, Anna ; Garbe, Claus ; Gavric, Zivana ; Hocevar, Marko ; Innos, Kaire ; Larønningen, Siri ; Louwman, Marieke ; Robsahm, Trude Eid ; Rutkwoski, Piotr ; van Akkooi, Alexander ; Zorzi, Manuel ; Pasquali, Sandro ; van de Velde, Cornelis ; Rossi, Carlo Riccardo. / Quality assurance in melanoma care : The EU-MELACARE study. In: European Journal of Surgical Oncology. 2018 ; Vol. 44, No. 11. pp. 1773-1778.
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title = "Quality assurance in melanoma care: The EU-MELACARE study",
abstract = "BACKGROUND: A significant disparity regarding survival outcome for melanoma among European regions is well recognized and access to high quality care for European melanoma patients needs to be improved. There is an unmet need for the implementation of minimal standard of care within defined clinical pathways and Quality Assurance (QA) indicators.OBJECTIVE: The EU-MELACARE study aims to identify shared variables for cutaneous melanoma cases recorded in melanoma registries across Europe.MATERIAL AND METHODS: Opinion leaders involved in melanoma data registration and care quality analysis in 34 European countries were invited to respond to an expert survey covering questions regarding the melanoma registration practice in their countries and the characteristics, coverage and variables collected by the relevant melanoma registries.RESULTS: Data regarding 13 melanoma registries from 11 European countries contributed to the study. The majority (61,5{\%}) were population based registries and more than half (62{\%}) had national coverage. The included registries collected a median of 38 variables (Interquartile Range, IRQ 21-76). We identified 24 shared variables available in >70{\%} of registries.CONCLUSIONS: This study provides valuable specific information on information recorded for melanoma cases are registered within Europe. A core of shared variables has been identified, which will constitute the basis for a standardized set of QA indicators for assessing and monitoring melanoma care across European countries.",
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author = "Antonio Sommariva and Ana-Maria Forsea and Domenic Agius and Ascierto, {Paolo Antonio} and Esther Bastiaannet and Lorenzo Borgognoni and Anna Demetriou and Claus Garbe and Zivana Gavric and Marko Hocevar and Kaire Innos and Siri Lar{\o}nningen and Marieke Louwman and Robsahm, {Trude Eid} and Piotr Rutkwoski and {van Akkooi}, Alexander and Manuel Zorzi and Sandro Pasquali and {van de Velde}, Cornelis and Rossi, {Carlo Riccardo}",
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T1 - Quality assurance in melanoma care

T2 - The EU-MELACARE study

AU - Sommariva, Antonio

AU - Forsea, Ana-Maria

AU - Agius, Domenic

AU - Ascierto, Paolo Antonio

AU - Bastiaannet, Esther

AU - Borgognoni, Lorenzo

AU - Demetriou, Anna

AU - Garbe, Claus

AU - Gavric, Zivana

AU - Hocevar, Marko

AU - Innos, Kaire

AU - Larønningen, Siri

AU - Louwman, Marieke

AU - Robsahm, Trude Eid

AU - Rutkwoski, Piotr

AU - van Akkooi, Alexander

AU - Zorzi, Manuel

AU - Pasquali, Sandro

AU - van de Velde, Cornelis

AU - Rossi, Carlo Riccardo

N1 - Copyright © 2018 Elsevier Ltd, BASO ~ The Association for Cancer Surgery, and the European Society of Surgical Oncology. All rights reserved.

PY - 2018/11

Y1 - 2018/11

N2 - BACKGROUND: A significant disparity regarding survival outcome for melanoma among European regions is well recognized and access to high quality care for European melanoma patients needs to be improved. There is an unmet need for the implementation of minimal standard of care within defined clinical pathways and Quality Assurance (QA) indicators.OBJECTIVE: The EU-MELACARE study aims to identify shared variables for cutaneous melanoma cases recorded in melanoma registries across Europe.MATERIAL AND METHODS: Opinion leaders involved in melanoma data registration and care quality analysis in 34 European countries were invited to respond to an expert survey covering questions regarding the melanoma registration practice in their countries and the characteristics, coverage and variables collected by the relevant melanoma registries.RESULTS: Data regarding 13 melanoma registries from 11 European countries contributed to the study. The majority (61,5%) were population based registries and more than half (62%) had national coverage. The included registries collected a median of 38 variables (Interquartile Range, IRQ 21-76). We identified 24 shared variables available in >70% of registries.CONCLUSIONS: This study provides valuable specific information on information recorded for melanoma cases are registered within Europe. A core of shared variables has been identified, which will constitute the basis for a standardized set of QA indicators for assessing and monitoring melanoma care across European countries.

AB - BACKGROUND: A significant disparity regarding survival outcome for melanoma among European regions is well recognized and access to high quality care for European melanoma patients needs to be improved. There is an unmet need for the implementation of minimal standard of care within defined clinical pathways and Quality Assurance (QA) indicators.OBJECTIVE: The EU-MELACARE study aims to identify shared variables for cutaneous melanoma cases recorded in melanoma registries across Europe.MATERIAL AND METHODS: Opinion leaders involved in melanoma data registration and care quality analysis in 34 European countries were invited to respond to an expert survey covering questions regarding the melanoma registration practice in their countries and the characteristics, coverage and variables collected by the relevant melanoma registries.RESULTS: Data regarding 13 melanoma registries from 11 European countries contributed to the study. The majority (61,5%) were population based registries and more than half (62%) had national coverage. The included registries collected a median of 38 variables (Interquartile Range, IRQ 21-76). We identified 24 shared variables available in >70% of registries.CONCLUSIONS: This study provides valuable specific information on information recorded for melanoma cases are registered within Europe. A core of shared variables has been identified, which will constitute the basis for a standardized set of QA indicators for assessing and monitoring melanoma care across European countries.

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KW - Health Services Accessibility

KW - Humans

KW - Melanoma/epidemiology

KW - Quality Assurance, Health Care

KW - Registries

KW - Skin Neoplasms/epidemiology

KW - Surveys and Questionnaires

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VL - 44

SP - 1773

EP - 1778

JO - European Journal of Surgical Oncology

JF - European Journal of Surgical Oncology

SN - 0748-7983

IS - 11

ER -