Quality of Care in Ulcerative Colitis: A Modified Delphi Panel Approach

Laurent Peyrin-Biroulet, Daniel C. Baumgart, Alessandro Armuzzi, Paolo Gionchetti, Shaji Sebastian, Silvio Danese, Fernando Magro, Sophie Higgins, Andrew Yaworksy, Benjamin Banderas, Sumesh Kachroo

Research output: Contribution to journalArticle

Abstract

Objectives: To establish clinical consensus on important and relevant quality-of-care (QoC) attributes in ulcerative colitis (UC) treatment that may improve treatment outcomes and guide best practices. Methods: Thirty-eight QoC attributes were identified in a literature review. Sixteen European-based experts were selected based on their contributions to UC guidelines, publications, and patient care. A 3-round, modified Delphi panel was conducted including an interview round, and 2 web-based rounds to reach consensus and finalize a QoC attribute list. Results: The draft QoC attribute list derived from a literature review and Round 1, expert interviews, comprised 63 attributes. In Rounds 2 and 3, the QoC attributes frequently rated as critically important were diagnosis (n = 15, 93.8%), treatment adherence (n = 15, 93.8%), and access to care/treatment (Round 2: n = 14, 87.5%; Round 3: n = 15, 93.8%). The final QoC attribute list consisted of 61 attributes across 20 domains, with the most attributes reported in the "treatment goals" domain (n = 9). Conclusion: QoC is a complex and evolving concept that can improve outcomes while maximizing healthcare resources. Limited time and resources hamper clinicians' ability to openly and empathetically communicate with patients; novel technology may help to offer solutions.

Original languageEnglish
Pages (from-to)346-353
Number of pages8
JournalDigestive Diseases
Volume36
Issue number5
DOIs
Publication statusPublished - Aug 1 2018

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Keywords

  • Guidelines
  • Inflammatory bowel disease
  • Outcomes research
  • Quality of care
  • Ulcerative colitis

ASJC Scopus subject areas

  • Gastroenterology

Cite this

Peyrin-Biroulet, L., Baumgart, D. C., Armuzzi, A., Gionchetti, P., Sebastian, S., Danese, S., Magro, F., Higgins, S., Yaworksy, A., Banderas, B., & Kachroo, S. (2018). Quality of Care in Ulcerative Colitis: A Modified Delphi Panel Approach. Digestive Diseases, 36(5), 346-353. https://doi.org/10.1159/000489845