Quality of Care Standards in Inflammatory Bowel Diseases: a European Crohn's and Colitis Organisation [ECCO] Position Paper

Gionata Fiorino, Theodore Lytras, Lisa Younge, Catarina Fidalgo, Sofie Coenen, Maria Chaparro, Mariangela Allocca, Ian Arnott, Peter Bossuyt, Johan Burisch, Marjo Campmans-Kuijpers, Lissy de Ridder, Axel Dignass, Ciara Drohan, Roger Feakins, Daniela Gilardi, Jan Grosek, Evelyn Groß, Ailsa Hart, Susanna JäghultKonstantinos Katsanos, Sanna Lönnfors, Yves Panis, Marko Perovic, Marieke Pierik, Jordi Rimola, Hagit Tulchinsky, Javier P Gisbert

Research output: Contribution to journalArticlepeer-review

Abstract

The management of inflammatory bowel disease [IBD] is complex, and requires tight control of disease activity, close monitoring to avoid treatment side effects, health care professionals with expertise in IBD, and an interdisciplinary, holistic approach. Despite various efforts to standardise structures, processes, and outcomes,1-8 and due to the high variability at the local, national, and international levels, there are still no clear definitions or outcome measures available to establish quality of care standards for IBD patients which are applicable in all contexts and all countries. For this reason, the European Crohn's and Colitis Organisation [ECCO] supported the construction of a list of criteria summarising current standards of care in IBD. The list comprises 111 quality standard points grouped into three main domains [structure n = 31, process n = 42, outcomes n = 38] and is based on scientific evidence, interdisciplinary expert consensus, and patient-oriented perspectives. The list of proposed criteria is intended to represent the position of ECCO regarding the optimum quality of care that should be available to patients. Since health care systems and regulations vary considerably between countries, this list may require adaptation at local and national levels. It is recognised that not all these criteria that have been identified as optimal will be available in every unit. However, ECCO will continue its efforts to develop and coordinate projects and initiatives that will help to guarantee optimal quality of care for all IBD patients.

Original languageEnglish
Pages (from-to)1037-1048
Number of pages12
JournalJournal of Crohn's & colitis
Volume14
Issue number8
DOIs
Publication statusPublished - Sep 7 2020

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