Quality of life after traumatic brain injury: The clinical use of the QOLIBRI, a novel disease-specific instrument

Jean Luc Truelle, Sanna Koskinen, Graeme Hawthorne, Jaana Sarajuuri, Rita Formisano, Klaus Von Wild, Edmund Neugebauer, Lindsay Wilson, Henning Gibbons, Jane Powell, Monika Bullinger, Stefan Höfer, Andrew Maas, George Zitnay, Nicole Von Steinbuechel

Research output: Contribution to journalArticlepeer-review

Abstract

Objective: To report the clinical use of the QOLIBRI, a disease-specific measure of health-related quality-of-life (HRQoL) after traumatic brain injury (TBI). Methods: The QOLIBRI, with 37 items in six scales (cognition, self, daily life and autonomy, social relationships, emotions and physical problems) was completed by 795 patients in six languages (Finnish, German, Italian, French, English and Dutch). QOLIBRI scores were examined by variables likely to be influenced by rehabilitation interventions and included socio-demographic, functional outcome, health status and mental health variables. Results: The QOLIBRI was self-completed by 73 of participants and 27 completed it in interview. It was sensitive to areas of life amenable to intervention, such as accommodation, work participation, health status (including mental health) and functional outcome. Conclusion: The QOLIBRI provides information about patient's subjective perception of his/her HRQoL which supplements clinical measures and measures of functional outcome. It can be applied across different populations and cultures. It allows the identification of personal needs, the prioritization of therapeutic goals and the evaluation of individual progress. It may also be useful in clinical trials and in longitudinal studies of TBI recovery.

Original languageEnglish
Pages (from-to)1272-1291
Number of pages20
JournalBrain Injury
Volume24
Issue number11
DOIs
Publication statusPublished - Oct 2010

Keywords

  • assessment
  • health-related quality of life
  • international
  • multi-centre study
  • QOLIBRI
  • Traumatic brain injury

ASJC Scopus subject areas

  • Clinical Neurology

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