Abstract
Duchenne muscular dystrophy results in a broad spectrum of physical and psychosocial consequences, both to patient and caregivers. This study was aimed to explore health-related quality of life and its possible determinants in Duchenne muscular dystrophy children and in their parents. Caregivers (21 mothers and 6 fathers; mean age, 40.04 years) of 27 Duchenne muscular dystrophy patients (mean age, 11.26 years) completed the validated Children Health Questionnaire-Parent Form 50 and the Family Strain Questionnaire. Children reported significantly lower scores than normative group in 10 of 15 Children Health Questionnaire dimensions. Only the use of wheelchairs (P =.02) and ventilators (P
| Original language | English |
|---|---|
| Pages (from-to) | 707-713 |
| Number of pages | 7 |
| Journal | Journal of Child Neurology |
| Volume | 26 |
| Issue number | 6 |
| DOIs | |
| Publication status | Published - Jun 2011 |
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Keywords
- caregivers
- Duchenne muscular dystrophy
- quality of life
ASJC Scopus subject areas
- Clinical Neurology
- Pediatrics, Perinatology, and Child Health
Cite this
Quality of life in duchenne muscular dystrophy : The subjective impact on children and parents. / Baiardini, Ilaria; Minetti, Carlo; Bonifacino, Simona; Porcu, Anna; Klersy, Catherine; Petralia, Paolo; Balestracci, Sara; Tarchino, Filippo; Parodi, Stefania; Canonica, Giorgio Walter; Braido, Fulvio.
In: Journal of Child Neurology, Vol. 26, No. 6, 06.2011, p. 707-713.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Quality of life in duchenne muscular dystrophy
T2 - The subjective impact on children and parents
AU - Baiardini, Ilaria
AU - Minetti, Carlo
AU - Bonifacino, Simona
AU - Porcu, Anna
AU - Klersy, Catherine
AU - Petralia, Paolo
AU - Balestracci, Sara
AU - Tarchino, Filippo
AU - Parodi, Stefania
AU - Canonica, Giorgio Walter
AU - Braido, Fulvio
PY - 2011/6
Y1 - 2011/6
N2 - Duchenne muscular dystrophy results in a broad spectrum of physical and psychosocial consequences, both to patient and caregivers. This study was aimed to explore health-related quality of life and its possible determinants in Duchenne muscular dystrophy children and in their parents. Caregivers (21 mothers and 6 fathers; mean age, 40.04 years) of 27 Duchenne muscular dystrophy patients (mean age, 11.26 years) completed the validated Children Health Questionnaire-Parent Form 50 and the Family Strain Questionnaire. Children reported significantly lower scores than normative group in 10 of 15 Children Health Questionnaire dimensions. Only the use of wheelchairs (P =.02) and ventilators (P
AB - Duchenne muscular dystrophy results in a broad spectrum of physical and psychosocial consequences, both to patient and caregivers. This study was aimed to explore health-related quality of life and its possible determinants in Duchenne muscular dystrophy children and in their parents. Caregivers (21 mothers and 6 fathers; mean age, 40.04 years) of 27 Duchenne muscular dystrophy patients (mean age, 11.26 years) completed the validated Children Health Questionnaire-Parent Form 50 and the Family Strain Questionnaire. Children reported significantly lower scores than normative group in 10 of 15 Children Health Questionnaire dimensions. Only the use of wheelchairs (P =.02) and ventilators (P
KW - caregivers
KW - Duchenne muscular dystrophy
KW - quality of life
UR - http://www.scopus.com/inward/record.url?scp=79957609976&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=79957609976&partnerID=8YFLogxK
U2 - 10.1177/0883073810389043
DO - 10.1177/0883073810389043
M3 - Article
VL - 26
SP - 707
EP - 713
JO - Journal of Child Neurology
JF - Journal of Child Neurology
SN - 0883-0738
IS - 6
ER -