Quality of life in duchenne muscular dystrophy: The subjective impact on children and parents

Ilaria Baiardini; Carlo Minetti; Simona Bonifacino; Anna Porcu; Catherine Klersy; Paolo Petralia; Sara Balestracci; Filippo Tarchino; Stefania Parodi; Giorgio Walter Canonica; Fulvio Braido

doi:10.1177/0883073810389043

Quality of life in duchenne muscular dystrophy: The subjective impact on children and parents

Ilaria Baiardini, Carlo Minetti, Simona Bonifacino, Anna Porcu, Catherine Klersy, Paolo Petralia, Sara Balestracci, Filippo Tarchino, Stefania Parodi, Giorgio Walter Canonica, Fulvio Braido

Research output: Contribution to journal › Article › peer-review

Abstract

Duchenne muscular dystrophy results in a broad spectrum of physical and psychosocial consequences, both to patient and caregivers. This study was aimed to explore health-related quality of life and its possible determinants in Duchenne muscular dystrophy children and in their parents. Caregivers (21 mothers and 6 fathers; mean age, 40.04 years) of 27 Duchenne muscular dystrophy patients (mean age, 11.26 years) completed the validated Children Health Questionnaire-Parent Form 50 and the Family Strain Questionnaire. Children reported significantly lower scores than normative group in 10 of 15 Children Health Questionnaire dimensions. Only the use of wheelchairs (P =.02) and ventilators (P

Original language	English
Pages (from-to)	707-713
Number of pages	7
Journal	Journal of Child Neurology
Volume	26
Issue number	6
DOIs	https://doi.org/10.1177/0883073810389043
Publication status	Published - Jun 2011

Keywords

caregivers
Duchenne muscular dystrophy
quality of life

ASJC Scopus subject areas

Clinical Neurology
Pediatrics, Perinatology, and Child Health

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10.1177/0883073810389043

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Quality of life in duchenne muscular dystrophy : The subjective impact on children and parents. / Baiardini, Ilaria; Minetti, Carlo; Bonifacino, Simona; Porcu, Anna; Klersy, Catherine; Petralia, Paolo; Balestracci, Sara; Tarchino, Filippo; Parodi, Stefania; Canonica, Giorgio Walter; Braido, Fulvio.

In: Journal of Child Neurology, Vol. 26, No. 6, 06.2011, p. 707-713.

Research output: Contribution to journal › Article › peer-review

Baiardini, Ilaria ; Minetti, Carlo ; Bonifacino, Simona ; Porcu, Anna ; Klersy, Catherine ; Petralia, Paolo ; Balestracci, Sara ; Tarchino, Filippo ; Parodi, Stefania ; Canonica, Giorgio Walter ; Braido, Fulvio. / Quality of life in duchenne muscular dystrophy : The subjective impact on children and parents. In: Journal of Child Neurology. 2011 ; Vol. 26, No. 6. pp. 707-713.

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Quality of life in duchenne muscular dystrophy: The subjective impact on children and parents

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Keywords

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