TY - JOUR
T1 - Quality of life in duchenne muscular dystrophy
T2 - The subjective impact on children and parents
AU - Baiardini, Ilaria
AU - Minetti, Carlo
AU - Bonifacino, Simona
AU - Porcu, Anna
AU - Klersy, Catherine
AU - Petralia, Paolo
AU - Balestracci, Sara
AU - Tarchino, Filippo
AU - Parodi, Stefania
AU - Canonica, Giorgio Walter
AU - Braido, Fulvio
PY - 2011/6
Y1 - 2011/6
N2 - Duchenne muscular dystrophy results in a broad spectrum of physical and psychosocial consequences, both to patient and caregivers. This study was aimed to explore health-related quality of life and its possible determinants in Duchenne muscular dystrophy children and in their parents. Caregivers (21 mothers and 6 fathers; mean age, 40.04 years) of 27 Duchenne muscular dystrophy patients (mean age, 11.26 years) completed the validated Children Health Questionnaire-Parent Form 50 and the Family Strain Questionnaire. Children reported significantly lower scores than normative group in 10 of 15 Children Health Questionnaire dimensions. Only the use of wheelchairs (P =.02) and ventilators (P
AB - Duchenne muscular dystrophy results in a broad spectrum of physical and psychosocial consequences, both to patient and caregivers. This study was aimed to explore health-related quality of life and its possible determinants in Duchenne muscular dystrophy children and in their parents. Caregivers (21 mothers and 6 fathers; mean age, 40.04 years) of 27 Duchenne muscular dystrophy patients (mean age, 11.26 years) completed the validated Children Health Questionnaire-Parent Form 50 and the Family Strain Questionnaire. Children reported significantly lower scores than normative group in 10 of 15 Children Health Questionnaire dimensions. Only the use of wheelchairs (P =.02) and ventilators (P
KW - caregivers
KW - Duchenne muscular dystrophy
KW - quality of life
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U2 - 10.1177/0883073810389043
DO - 10.1177/0883073810389043
M3 - Article
C2 - 21482750
AN - SCOPUS:79957609976
VL - 26
SP - 707
EP - 713
JO - Journal of Child Neurology
JF - Journal of Child Neurology
SN - 0883-0738
IS - 6
ER -